Showing posts with label standards. Show all posts
Showing posts with label standards. Show all posts

Sunday, 28 September 2014

ERCIM News No. 99 Special theme: "Software Quality"

Dear ERCIM News Reader,

ERCIM News No. 99 has just been published at
http://ercim-news.ercim.eu/en99

http://ercim-news.ercim.eu/en99Special Theme: "Software Quality"
http://ercim-news.ercim.eu/en99/special/

And on the occasion of ERCIM’s 25th anniversary, we published a selection of articles on the future challenges of ICST:
http://ercim-news.ercim.eu/en99/challenges-for-icst

Keynote by Willem Jonker, CEO EIT ICT Labs: "The Future of ICT: Blended Life"
http://ercim-news.ercim.eu/en99/keynote/the-future-of-ict-blended-life



This issue is also available for download as:
pdf:  http://ercim-news.ercim.eu/images/stories/EN99/EN99-web.pdf
epub: http://ercim-news.ercim.eu/images/stories/EN99/EN99.epub

Next issue: No. 100, January 2015 - Special Theme: "Scientific Data Sharing"

Thank you for your interest in ERCIM News.
Feel free to forward this message to others who might be interested.

Best regards,
Peter Kunz
ERCIM News central editor

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ERCIM "Alain Bensoussan" Fellowship Programme
ERCIM offers fellowships for PhD holders from all over the world.
Next application deadline: 30 September 2014 http://fellowship.ercim.eu/
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ERCIM News
is published quarterly by ERCIM, the European Research Consortium for Informatics and Mathematics.
The printed edition will reach about 6000 readers.
This email alert reaches over 7300 subscribers.
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About ERCIM
ERCIM - the European Research Consortium for Informatics and Mathematics - aims to foster collaborative work within the European research community and to increase co-operation with European industry. Leading European research institutes are members of ERCIM. ERCIM is the European host of W3C.
http://www.ercim.eu/

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Friday, 5 September 2014

ICN and IHTSDO extend collaboration to advance harmonisation of health terminology

Press Information   .   Communiqué de presse   .   Comunicado de prensa


Geneva, Switzerland & Copenhagen, Denmark, 1 September 2014

The International Council of Nurses (ICN) and the International Health Terminology Standards Development Organisation (IHTSDO) today announced an updated collaboration agreement to advance terminology harmonisation and foster interoperability in health information systems.  The new collaboration agreement signed today will be reviewed on completion of the work or in April 2016, whichever is earliest.

The overarching goals of this collaboration are to ensure that nurses worldwide have the tools they need to carry out their jobs effectively, that they are not disenfranchised from the global informatics infrastructure, and that they remain active in the collection of meaningful and useful health information.

As part of the collaboration agreement, ICN, owner of the International Classification for Nursing Practice (ICNP), and IHTSDO, owner of SNOMED CT, have agreed to undertake further work that defines the relations between SNOMED CT and ICNP to enable their interoperability in health information systems globally. It builds on work already undertaken to produce an equivalence table for nursing diagnoses.

In the coming years IHTSDO and ICN will focus on two key areas of work: joint publication of a completed equivalence table between SNOMED CT and ICNP for Nursing Diagnoses, and joint publication of a completed equivalence table between SNOMED CT and ICNP for nursing interventions.

“ICN is delighted to extend our collaboration with IHTSDO,” said David Benton, ICN’s Chief Executive Officer.  “This agreement will be of mutual benefit to both organisations as well as to patients and will improve the description and comparison of nursing practice locally, regionally, nationally and internationally.

“IHTSDO is pleased to be continuing its collaboration with the ICN”, said Jane Millar, Head of Collaboration at IHTSDO. “Our joint work in linking SNOMED CT and ICNP will be of benefit to the nursing profession worldwide to ensure a common understanding and interoperability, and also to support sharing with other members of the healthcare team.”

The first collaborative agreement between the two organisations was signed in 2010, and in January 2014 the cooperation was further advanced by the announcement of an equivalence table between ICNP concepts and SNOMED CT concepts.

Notes to the Editor:

ICN and IHTSDO are the developers of the International Classification for Nursing Practice (ICNP) and SNOMED Clinical Terms (CT), respectively. The ICNP terminology serves a critical role for ICN in representing the domain of nursing practice worldwide, thus providing nurses at all levels with data-based information used for practice, administration, education and research. SNOMED CT is a multidisciplinary healthcare terminology designed to support the entry and retrieval of clinical concepts in electronic record systems and the safe, accurate, and effective exchange of health information.

About ICN:
The International Council of Nurses (ICN) is a federation of more than 130 national nurses associations representing the millions of nurses worldwide. Operated by nurses and leading nursing internationally, ICN works to ensure quality care for all and sound health policies globally. (www.icn.ch).

About IHTSDO:
IHTSDO determines global standards for health terms, an essential part of improving the health of humankind. Its experts work collaboratively with diverse stakeholders to ensure that SNOMED CT, its world-leading terminology product, is accepted around the world as the common language for health (www.ihtsdo.org).

My source: Amy L Amherdt

Wednesday, 25 June 2014

For portals, speak patients' language ( c/o Healthcare IT News )

Mike Miliard's 

in Healthcare IT News is a reminder of accessibility and engagement at the level of a communities languages.

This is one of the reasons why I am committed to using Drupal, to try to make use of its Internationalization capabilities amongst others. 

Thanks to Mike's post I'm now familiar with a 'full court press' as a hospital - enterprise wide no less - seeks to achieve defined patient engagement levels by accessing their electronic health record.

This begs the question of what constitutes the patients' language? I don't just mean the purely linguistic forms of Chinese, Korean, Russian and Greek mentioned in the article. The effort is driven by the statutory demands of meaningful use, but what of the patient's general literacy, IT and health literacies? How do patients make sense of their own health (or another in the role of a carer) not just in a given language, but culturally from a medical sociological and public health perspective? What is the community's vocabulary when it comes to health?

How can we assure that meaningfulness? How can we affirm that use and critically translate use into patient benefits and self-efficacy?

You could also entitle Mike's article as

4 portals speak patients' language

individual
INTERPERSONAL : SCIENCES
humanistic ------------------------------------------- mechanistic
SOCIOLOGY : POLITICAL
group
Health Literacy, Accessibility
Measures (health literacy, patient engagement, health and well-being, clinical outcomes)


Cultural Diversity, Languages, Carer

Internationalization
'Meaningful Use', Standards, Legislation, Policy


When we focus on languages we must remember that listening is a great gift. Whether as health and IT professionals, educators, patients and carers, listening to the care domains can help us integrate diverse social, clinical, policy and technical objectives.

What do these portals say to you?

Mike Miliard twitter

Tuesday, 20 May 2014

3-day Short Course in Systematic Reviewing and GRADE, 2-4 July 2014, UCL and NCCMH

http://www.ucl.ac.uk/clinical-psychology/CORE/Images/grade-approach-poster.png
Dear all,

I’d be very grateful if you could forward this onto any colleagues you think would be interested in attending. Many thanks.

Introduction to Systematic Reviewing and the GRADE Approach
3-day short course
UCL, London

Led by Dr Craig Whittington, with over 10 years’ experience developing NICE clinical guidelines and Cochrane reviews.
  • A practical approach to systematic reviewing taught by experts developing clinical guidelines for NICE.
  • Get the latest advice about GRADE, the sensible and transparent approach to grading quality of evidence and strength of recommendations, adopted by the Cochrane Collaboration.
  • Bring an idea for a systematic review; leave with a protocol and toolkit to get the work completed to the very highest standard.
Please visit:
http://www.ucl.ac.uk/clinical-psychology/CORE/short-courses/grade-approach.htm

To book please email snaqvi AT rcpysch.ac.uk
Best wishes,
Sabrina Naqvi

Sabrina Naqvi
Project Manager
National Collaborating Centre for Mental Health
The Royal College of Psychiatrists
3rd Floor | 21 Prescot Street | London E1 8BB
Website: http://www.rcpsych.ac.uk

MEMO: .health as a top-level domain

m e m o r a n d u m
Date:20 May 2014
To: ICANN
From: PETER JONES
Subject:
Please do not try to put a full stop to ongoing efforts to utilise the internet to benefit the true health and well-being of the world's citizens.

The work is a challenge, much has been achieved and there is great promise for the future and not merely through the quantified self, personalised medicine, biotechnology and the virtual healthcare market. ...

The self, indeed this whole effort must be assured, integrated and qualified.

This means of course that the provenance, standards and values vested in health related data, information and knowledge must be of the highest quality.

Then - we can start to think about -




Yours sincerely,

Peter Jones

Additional link:
http://www.jmir.org/2014/3/e73/

Monday, 19 May 2014

[hifa2015] World Medical Association calls for a moratorium on the sale of the .health top-level domain

Dear colleagues,

The World Medical Association has called for a moratorium on the sale of the .health top-level domain (TLD). This is significant as the WMA 'is an international organization representing approximately 9 million physicians of all specialties and sectors.'

Below are extracts from a letter from the WMA Secretary-General dated 8th March to ICANN (the body that administers internet domains). The full letter is available here:

http://www.icann.org/en/news/correspondence/kloiber-to-chehade-et-al-11mar14-en.pdf
'By now the ICANN Board is aware that .health is one of the ten most opposed new gTLDs...'

'... We, the World Medical Association (WMA), add our voice to recommend that the auction of the .health gTLD not go forward.'

Best wishes,
Neil
-----
[ c/o Neil Pakenham-Walsh ]

Let's build a future where people are no longer dying for lack of healthcare knowledge: Join HIFA www.hifa2015.org

Saturday, 19 April 2014

care.data: too much information?

individual
INTERPERSONAL : SCIENCES
humanistic ------------------------------------------- mechanistic
SOCIOLOGY : POLITICAL
group

individual - person
ethics
'personal'
My identity:
 lost in numbers Vs. specificity of patterns
*my attitude to my 'sensitive' information
health literacy
personal responsibility, self care, quantified self
my understanding of care.data
Trust



datasets, BIG data
hospital episodes, treatments
research
privacy research
 anonymising process for nhs data
*care.data is a natural step towards personalised medicine?
axon - neurobiology
Axon - data warehouse
statistics
service development and innovation

data security, law, information governance
NHS
commercial, contract
potential for abuse - assumptions
public mental health
public health
policy, consultation
policy communication
public engagement, primary care
informed consent, opt-out
data definitions, standards
ISO27001
population, insurance



Additional links:
Allyson Pollock - Protecting confidential patient information and promoting public health research. Three proposed amendments to the Care Bill

Building trust in the use of personal data for medical research, 1 April 2014, AMRC

Image source:
http://www.contactmusic.com/press/maximo-park-announce-new-album-too-much-information-released-3rd-february-2014

Sunday, 23 March 2014

Sensing Spaces: Care architecture - memories of choice

Good architecture is often invisible,
but it allows whatever is happening in that space to
be the best experience possible.

Pezo von Ellrichshausen


Good architecture may have something in common with good health; it is something that can be taken for granted. When things go awry and are wrong then architecture and health suddenly impose upon us, a major intrusion.

As I may have mentioned before, in the past I've been asked how I've managed entering such and such care facility for so long. Within health there is recognition of heartsink patients. There are still heartsink buildings too. Not purpose built, seemingly either all narrow dark corridors, interrupted when doors let in shafts of light and assault dignity and privacy; or large 'lounges' that still invite armchairs to be flung against walls.

Architecture like this is not invisible. Walls are walls, blanc, flat and solid. Pictures removed due to safety concerns. Two holes and exposed plaster testify to what? Now, after six months....?

Even for the confused there are few potential found spaces, spaces to sit, stand, be; spaces towards which some personal impetus might have a person gravitate. A space of relative quite, looking out on some-thing relaxing even if not a small garden feature.

"Where's Joan, her friend's here to see her?"
"It's OK, I know where she'll be."

Royal Academy: Sensing Spaces
Education guide



 


Friday, 21 March 2014

BCS, UKCHIP and IHRIM announce a new vision for the health informatics profession at HC2014

UKCHIP IHRIM

19 March 2014

BCS, The Chartered Institute for IT, the UK Council of Health Informatics Professions (UKCHIP) and the Institute of Health Records and Information Management (IHRIM) are working collaboratively to create a new federation for the Informatics profession. The three autonomous bodies will work closely together in a federation to ensure that UK health informatics is recognised as a valued profession. 

Justin Whatling, Chair of BCS Health, part of the Chartered Institute for IT, explains: “This is a very exciting moment for health informatics. Today technology has an immense and profound impact on the health and wellbeing of people. Therefore it’s time for the profession to mature to meet the increasing demand on our skills and capability. We want health to be an attractive place for informatics professionals from other sectors to come and work, and we want to provide a clear career path and professional development opportunities to retain those already working in health. The federation will help us to achieve this.”

The initiative comes as the NHS is under increasing pressure to find and implement new models of health and social care that will provide services closer to people’s homes. This requires health professionals to share accurate information securely and confidentially. In addition, the Caldicott 2 Review has introduced a Duty of Care to Share health information. Both of these things have happened at a time when public trust in the NHS’ ability to handle personal health information has taken a hit.

The federation will be open to all other informatics professional bodies, the private sector, the home countries and lay representation. It will provide leadership of the overall profession with a single professional register and point of entry for professionals, oversee an agreed regulatory framework with a common code of ethical practice and coordinate access to resources providing a unified set of capabilities for all professional areas of practice.

Read more

Thursday, 13 March 2014

Is it a Ship, Mars Mission I, a Biscuit, IPO, or Cyber Attack ...?

No!

It's a 3rd year student nurse, 
several in fact
launched 
on their careers.

It is quite a poignant life changing and affirming moment for everyone involved. Of course, there are instances were qualification is problematic, but this is about the +ve.

For the student of course, this represents a great achievement and the realisation of the responsibilities that suddenly apply. This is tempered by preceptorship as mentor and sign-off mentors remind and reassure.

Our students have jobs and this is heartening to hear. They really are off and up-and-running.

There are graduation celebrations and parties to follow for them, but this past week I wondered about another way to signify this literally professional defining event. A way that accompanies and yet transcends the final page 'sign-off' that clearly does carry volumes of meaning and learning.

There was a fleeting thought that I shared: should I form an arch with the student's mentor for the student to pass through? A laugh.

Heaven forbid that this week and day should be for any student an anticlimax. Speaking of heaven there are of course pledges out there. Which also includes:

Nursing is an art;
and if it is to be made an art,
it requires as exclusive a devotion,
as hard a preparation,
as any painter's or sculptor's work;

for what is the having to do with
dead canvas or cold marble,
compared with having to do with the
living body - the temple of God's spirit?

It is one of the Fine Arts;
I had almost said
the finest of the Fine Arts

- Florence Nightingale, 1868.

As I would like to pass on the (twinned-)baton that is Hodges' model, could there be a form of words that can reflect the entry of a new nurse into our midst; an exchange of words that captures the moment for the student, the mentors, nursing and the public we care for and with?

This may seem twee, archaic, a nod to times of formality, the sense of duty, vocation and hierarchy. This wouldn't be about hierarchy, experience yes. It would be reflexive, a dialogue between these 'professionals' that acknowledges the student's rite of passage, the present moment and the collective future of nursing, of caring and their position in time and the professions' values.


Monday, 3 March 2014

The limitations of the healthcare sector


4
many
decades there 
have been recurring 
issues, austerity measures, 
requirements, policy challenges, 
policy initiatives, gaps between theory 
and practice, a crisis in compassionate care, 
rising waiting times and a plethora of other concerns.

All these then and much more 
affect the
 healthcare
 sector

Clearly, there is no 'magic wand', but there must be a way to address some of the difficulties? 
Within health and social care, locally, nationally and globally we need a tool to help improve interprofessional reflective practice, to support person-centered, holistic care across physical, emotional, social, political and spiritual domains of care. 

The future demands a resource (free, open, easy to learn) that can also facilitate self-care, health literacy and the many carers within families and communities.
 
So, how big is your picture?




Sunday, 9 February 2014

End of Life Care: Gold Standards Framework (Heaven's door)


INTERPERSONAL : SCIENCES
humanistic ------------------------------------------- mechanistic
SOCIOLOGY : POLITICAL

individual
PRIMARY CAREACUTE CARE
CARE HOMESDEMENTIA (CARE)
group - population


Looking at a table 'GOLD STANDARDS SET BY BENCHMARK PROGRAMME' (p.23) in Prof. Thomas's HSJ article, I could see an instant fit between the four listed care contexts and the domains of Hodges' model.

There are also many overlaps and of course Hodges' model is an idealised resource. For example,  governance applies across all the above and in that way all can be placed in the POLITICAL domain.

Further points explaining the above includes:
  • The GP and primary care seeing the person first not the diagnosis. Again in this sense - respect and dignity we can place all these care specialisms in the INTERPERSONAL. You would hope that primary care 'know' the patient as a person, an individual; or at least through recourse to the primary care record.
  • If a care home 'works' it will be able to deliver care almost transparently, it is not a process but a social gathering. It is not the person's home (their home is not something to be forgotten, replaced like their past), but it seeks to emulate this as far as possible. Care is a routine that is also personalised and even at the end of life there is peace, calm and dignity.
  • Dementia care is a political challenge, a priority and challenge across all the domains. As in the previous post - what training is provided to Health Care Assistants and other staff? How is the strategy for dementia progressing across all these care environments?
The National Gold Standards Framework Centre in End of Life Care

Thomas, K. (2014) 'End of life care is a litmus test for the whole of the NHS'.  HSJ, 31 January, 124, 6384, 21-23.

Saturday, 8 February 2014

HCA training: Knock, knock, knocking on the political domain's door

INTERPERSONAL : SCIENCES
humanistic ------------------------------------------- mechanistic
SOCIOLOGY : POLITICAL

individual
emotional care

physical care


social care


FRANCIS - a year on: 
How much training do healthcare assistants have before their first shift on a ward?

25% = none
 
group - population


Although that 25% sits nicely in the POLITICAL domain, what is the impact of this finding across the domains overall? Whether or not the impact is equally shared across the interpersonal, sciences and social domain, upon which domain will it end up knocking?


Calkin, S. (2014) Francis impacts on culture and patient safety, HSJ, 7 February. 124, 6376, 4-5.

Tuesday, 21 January 2014

ICN and IHTSDO partner to provide a new Informatics Resources for nurses

International Council of Nurses (ICN) and International Health Terminology Standards Development Organization (IHTSDO)
partner to provide a new Informatics Resources for nurses

Geneva, Switzerland, Copenhagen, Denmark, 20 January 2014 - The International Council of Nurses (ICN) and the International Health Terminology Standards Development Organisation (IHTSDO) are pleased to announce an equivalency table between the International Classification for Nursing Practice (ICNP) concepts and SNOMED CT concepts. The table contains ICNP Diagnosis and Outcomes Statements that have semantic equivalencies with SNOMED CT concepts.

ICNP is an international standard that facilitates the description and comparison of nursing practice locally, regionally, nationally and internationally. The ICNP terminology serves a critical role for ICN in facilitating representation of the domain of nursing practice worldwide to promote evidenced based quality care. ICNP provides nurses with content solutions for electronic health records (EHRs) at all levels to support data-based information for use in practice, administration, education and research. SNOMED CT, a multidisciplinary international healthcare terminology, is designed to support the entry and retrieval of clinical concepts in electronic record systems and the safe, accurate, and effective exchange of health information.

“This equivalency table between ICNP and SNOMED CT is a tangible demonstration of how collaboration among standards development organisations can contribute to improved and standardized documentation of healthcare delivery,” noted ICN CEO David Benton. “Greater standardization supports the larger goal of interoperability of systems as well as better understanding of the contributions that each discipline makes to health outcomes and the effective and efficient use of health resources.“

“The IHTSDO is pleased to see this work being made available to users internationally and hopes that there will be feedback on its usage over time in supporting the care of individuals on a multidisciplinary basis. Continued collaboration with ICN is important to the IHTSDO going forward, providing a key link to the nursing profession internationally” said Jane Millar, Head of Collaboration at IHTSDO.

This new product advances the collaboration on terminology development agreed between ICN and IHTSDO in their 2010 harmonization agreement by allowing ICN to make the equivalency table available through its website at the ICNP Download page ( http://www.icn.ch/pillarsprograms/icnp-download/ ). Although this table is not formally endorsed by IHTSDO, persons interested in using it should review the terms of the SNOMED CT Affiliate License before downloading ( www.ihtsdo.org/licence.pdf ).

The product can be a useful resource to nurses and healthcare facilities interested in using SNOMED CT for documentation in EHRs and using ICNP to help identify clinically relevant content for use in documentation of nursing care.

An additional product from ICN, the ICNP Technical Implementation Guide, was also recently released with the intent of supporting ICNP users, from vendors to nurses in care delivery settings. When used alongside documentation available on the IHTSDO website ( http://ihtsdo.org/fileadmin/user_upload/doc/ ), the Implementation Guide will be of particular use to those who choose to access and use the ICNP-SNOMED CT Equivalency Table in that it gives details about applications that use ICNP, approaches to implementation, structure and content of ICNP, and technical overview. The ICNP Implementation Guide is available on the ICN website ( www.icn.ch/pillarsprograms/implementing-icnpr/ ).

My source: Amy L Amherdt, icn-ehealth

Wednesday, 1 January 2014

Book review: "Nursing Informatics and the Foundation of Knowledge" (long book - long review)

Happy New Year to everyone!

Last spring I requested a book for review and received three c/o and with thanks to Jones & Bartlett Learning Nursing. Finally, I've picked up the second - and about time it seems - as on this first day of 2014 the publishers are planning the 3rd edition. This book provided a break from virtual matters being a door-stop of a book; 538 pages, excluding abbreviations, glossary and index. In addition to this physical rendering the publishers emphasize an online presence for this and other books. Inside the cover there is a card with an access code to unlock the companion website for online resources for readers, students and lecturers. The account setup is straightforward and there are additional student exercises beyond those in the book.

Informatics is by definition a challenge for authors and publishers. Even though published in 2011 - 2012 time is at work. From the outset then the team involved in this text are to be congratulated on what is a monumental task in scale and time.

The foundation of knowledge in the title refers to the adopted conceptual framework - the foundation of knowledge model, which is illustrated at the start of the book's sections and especially section I on the building blocks of nursing informatics.

http://www.jblearning.com/catalog/9781449631741/
The foundation of knowledge model was itself quite a hook for me.
The model includes bits, bytes, data and information and from this arise:
  • knowledge acquisition
  • knowledge processing
  • knowledge generation
  • and knowledge dissemination
- with all of these influenced by and influencing feedback (there is an illustration in the sample chapter). The model describes people as information systems. Although the diagram presents a structure for the model, and it fits this informatics context very well and provides a link throughout the book it is not convincing in terms of subjects, agents, and knowledge disciplines. Admittedly the foundation of knowledge model is high level like Hodges’ model. Similarly, it is not prescriptive in terms of how events, phenomena are characterised. Data, information, knowledge and wisdom are however, the most fuzzy of concepts and subject to ongoing philosophical debate. I'll reflect a little more on this later. As already noted the model works here and I see online that a couple of students (and no doubt a great many more) have utilised the model in e-portfolios.

Each chapter has a listing of key terms, which are highlighted in the text. There are reflective questions at the end of each chapters. Chapters are concise, well referenced across various media and are all accessible and evident of a great editorship. There are a couple of longer treatments of certain and well chosen topics. Within chapters there are brief diversions in boxes on a related theme, for example in chapter 3, box 3.2 on ‘storage capacities’. I’d almost forgotten about EPROM and RAM, even though I used to purchase computer programs on EPROMS and ROMS in the 90s. Although abbreviations still abound, these abbreviations have become rather transparent now - and may say more about the generational scope of the authors - including this one? If these are going to be included then where is ‘GPU’, ‘SSD’ …? This is a difficult balance to strike, but mention of these struck me as antiquated and date the text. ('GPU' is hardly new - 1998 c/o Nvidia)

With two major companies referred to early on, open source is explained on page 43 and in the examples of software programs that are listed. The book is courageous in several respects introducing the model, listing software and specific technology examples, some of which can be brief in terms of market longevity. The emergence of the cloud is discussed and provides a current flavour, as with usability (‘UX’). Although the authors are clearly leaders and advocates for nursing informatics and the technologic, the enthusiasm is tempered.

The limits and complexity of AI artificial intelligence are raised in addition to the revolutionary progress. Chapter 4 on cognitive informatics I found personally fascinating, as it reassures me about my interest in the potential of combining conceptual spaces, threshold concepts with Hodges’ model. As a result I previously posted items from the book about cognitive informatics and another relating Beauchamp and Childress’s four principles of health care ethics to Hodges’ model.

Chapter 5 continues the consideration of the limits and challenges posed by technology in exploring the theoretical approaches to health care ethics. The standards for e-health ethics will now be tested with the fate of the .health domain (deliberated online at HIFA2015 to follow...). I wonder if this debate will figure in the 3rd edition? Clearly there are implications for the governance of such a domain. As the chapter points out many ethical e-health standards are voluntary.

As an individual and a reviewer of book with international scope and a discipline with international global aspirations you are acutely aware of your parochial situation. When I look at the UK (Northwest England!) and nursing informatics it seems, with some exceptions to have failed to make a mark in nursing. Yes, colleagues and I use an electronic health record, but there is so much more that could be provided in terms of purposes, functionality and reports. The majority of student nurses I speak to do not seem to be primed let alone tutored for the wider informatics world they will enter as practitioners. So much more that could be done with mobile technology, caseload management tools, research tools. Perhaps this is why as I read of - the use of decision support systems and expert systems (p.77) – I thought “Get real!”. How accessible are such tools to the majority of nurses? Speaking from Wigan Pier at least, if it is 'nursing informatics' you seek then you must be westward bound. It appears there is quite a difference in the esteem of nursing informatics in the USA and UK? - and my review reflects this. Jocularity aside there are two serious points here.

1. The book is clearly USA centric, but it really is relevant to readers elsewhere (I thought there might be a problem registering on the website, but there was no .
2. The other point concerns activism.

When there is an opportunity should we advocate for nursing? Is there scope for this within a nursing informatics text? Even in ‘developed’ nations we should take nothing for granted be that the UK - rickets, TB, sexually transmitted diseases in older adults, obesity; or the United States with the potential impact of climate change and health inequality (MacKenzie, 2013, America's hidden epidemic of tropical diseases). The complexity of nursing and health is also apparent while reading that informatics can serve to check compliance with antibiotic regimes, you simultaneously reflect on the need to reduce the general prescribing of antibiotics and the correct administration and management when they are utilized.

My interest in and exposure to informatics and the humanistic-mechanistic axis within Hodges’ model brought me to the socio-technical literature. Even though socio-technical aspects of nursing and nursing informatics abound implicitly in the book (chapter 6, page 100 and elsewhere – chapter 16) ‘sociotechnical’ or ‘socio-technical’ does not have a place in the index. Although they rarely come across it – hence my thoughts above – I explain something of classification and coding to the student nurses who visit our team. Chapter 7 is a very informative contribution on this subject by one of several international contributors (all listed at the book’s start). How can nursing informatics make an impact if nursing students are not aware of the existence of nursing terminologies and approaches – enumerative and ontological - to the same? Nurses should be aware of the international standards associated with their profession - nursing terminologies included. Chapter 8 on nursing roles, competencies and skills prompted me to wonder about other forms of informatics and to what extent there can (should) be dialogue between these other disciplines?

In, Information and Knowledge needs of nurses in the 21st century (chapter 9), as an individual practitioner you are always situated (p.531) in a local nursing experience. I think this is where the model needs to be extended to facilitate the incorporation of local, global and glocal perspectives. Surely informatic's role as the latest technical means to communicate across a diaspora and it seems create a reverse diaspora through online communities and virtual worlds is worthy of a political stance? Global initiatives such as Health Information for All 2015 (what year is it next and still so much to do...) and other groups (maternal and infant care) need nursing's support and this extended information-informatics awareness (wisdom!) might also pay local and national dividends?

Chapter 10 is lengthy as befits legislative matters which nevertheless maintain the readable tone, clearly there is an ongoing evaluation by systems suppliers and users on the potential of the Cloud (Chapter 17). Chapter 11 was a nice surprise and the impact of which I have already referred to in e-portfolios. Individuals act as their own portal – p.187. This is a subject that (I hope) will occupy me for the next couple of years. The use of e-media by nurses for reflective commentary using web publishing tools is addressed very well. Having just ordered a second hand copy of Etienne Wenger’s book on communities of practice I find this discussed here:
In the future it is hoped that the use of communities of practice in nursing will grow beyond knowledge sharing and promote more knowledge discovery and sense making. p.189.
I’m not sure if e-portfolios have affected the EU populace with the rapidity and extent expected (by 2010), but there is a series of ongoing conferences dedicated to the cause. In the 1990s and early 2000s you could not miss the emphasis on benefits realization. If this concept has had its day what exactly happened? (There is no longer a need to prove the worth, potential of the computer at the bedside, nurses station.) We should still focus on outcomes as noted in several  chapters.

The sections also take on a practical – application focus across administration and nursing functions. Open source is further examined p.212. If SQL is mentioned would it help to acknowledge the development of noSQL approaches? Memory and processing power (for indexing) are less of a constraint on systems now. There is another challenge presented to editors: is 2004 really a ‘recent’ study? ‘Recent’ and its synonyms ‘currently’ need to be checked throughout the book and revised accordingly. The same applies to references to demographics and changes in nursing numbers (p.320-321). The trends in the numbers are established and remain, but perhaps there are more up-to-date sources? Throughout the book there are also case studies and pointers to research that provide practical and personal insights to the subject at hand.

While the context is nursing and informatics I think the discussion on ‘health literacy’ requires a critical review. It seems that health literacy may be being construed as synonymous with health technology literacy, computer and information literacy which are also noted in the text. There is admittedly a great deal of overlap.

‘Health literacy’ needs to be considered before a specific health problem arises – it is too late then. Health literacy does not mean, should not be equated with the deployment and use of e-tech applied to people with diabetes, coronary heart disease. Is this specific health education aimed at self-care, relapse prevention, staying well? Is health literacy concerned with positive health?

http://www.healthliteracy.org.uk/why-it-is-important

I’m sure the authors – editors are only too aware of this but this understanding of the wider context of ‘health literacy’ as a field of research and practice is not conveyed at present. I also don't necessarily see a wiki as a search tool, yes you can search a wiki but it is a type of repository and as such the effectiveness of a search must depend on the contributions made and the preceding searches. Perhaps a dedicated wiki could become a form e-grey literature?

A highpoint for this reviewer was to read: Learning is a multispatial function, … (p.406). It certainly is. The discussion on creating learning resources is an excellent introduction, especially on using the electronic health record as the learning resource.

In considering the future chapter 29 does not explicitly utilize the framework of knowledge. This may provide an opportunity to extend the framework to more readily integrate bio-psychosocial-political and spiritual perspectives through time. The framework of knowledge within informatics is a great resource. As mentioned this drew my interest to the book, in 1996 I sought to relate informatics concepts to nursing and mental health (redundancy, entropy.... see bibliography). Whatever the differences between the USA and UK nursing informatics the framework might benefit from a way to integrate context, specific concepts and practices, self-care, interprofessional education and wisdom.

This is a great book, one that is also courageous in its scope and execution. The third edition will be very well worth not just purchasing, but applying. Thanks again to Jones & Bartlett Learning for this copy.

MacKenzie, D. (2013). America's hidden epidemic of tropical diseases, New Scientist. 11 December 2013, 2947.
http://www.newscientist.com/article/mg22029473.200-americas-hidden-epidemic-of-tropical-diseases.html?full=true
 
McGonigle, D., Mastrian, K.G. (2012) Nursing Informatics and the Foundation of Knowledge, Second Edition. Jones & Bartlett Learning, Burlington, MA.

Wednesday, 4 December 2013

The EQUATOR Network: Support for “Declaration of transparency”

http://www.equator-network.org/

Following publication in the BMJ, in October 2013, of a proposed declaration of transparency a number of journals have now expressed their support for the transparency declaration and now ask lead authors to sign a declaration affirming that:
"this manuscript is an honest, accurate, and transparent account of the study being reported; that no important aspects of the study have been omitted; and that any discrepancies from the study as planned (and, if relevant, registered) have been explained".

The following journals have now expressed their support:

BMJ
BMJ Open
BJOG: An International Journal of Obstetrics and Gynaecology
Canadian Journal of Anesthesia
NIHR Journals Library

Reference: Altman DG, Moher D. Declaration of transparency for each research article. BMJ 2013;347:f4796 [free full text].


My source: equator network - newsletter December 2013

Wednesday, 20 November 2013

Consultation on the proposed withdrawal of the SNOMED CT national care planning content

In addition to responding myself, I notice on the actual consultation page on 'Citizen Space' there is an option to share this consultation.

Dear Peter,

You are registered for the care planning content via the HSCIC Technology Reference data Update Distribution website.

The national Care Planning Content is designed for use to support care planning functionality across health and social care. This functionality crosses many professions/sectors which may have differing descriptions for a care plan in the traditional health record (e.g. treatment plans, birthing plans, support plans, intervention plans or care order sets). The content can support the interoperation of care plans across boundaries and paper based care plans based on the pack have also been used successfully to gain greater familiarity with structured terminology (SNOMED CT).

More details at: http://www.infostandards.org/careplanning

The absence of a declared owner or sponsor for this product means that we are proposing to withdraw it and are keen to hear views and understand the impact of not maintaining this content and its associated services.

We have a number of questions to determine how information Standards could best support the development of a standard for care planning, the consultation can be found at:

https://consultations.infostandards.org/bdea/snomed-ct-care-planning/consult_view

- and we would value and encourage your feedback on this proposal.

If you have any questions regarding the above you can contact us by sending an e-mail to information.standards AT hscic.gov.uk. This is the preferred form of communication.

You can also telephone for advice and support. Our telephone number is +44 845 13 00 114
We are available weekdays from 9am to 5pm.

Regards
The TRUD support team
Health and Social Care Information Centre

Tuesday, 8 October 2013

Infostandards.org: HSCIC supports the information standards community

Dear Peter,

You may have seen the publicity this week regarding the launch of a new website, www.infostandards.org, developed by the Health and Social Care Information Centre, working with the Department of Health, NHS England and other commissioning partners.

Infostandsards.org has been developed to support information standards professionals across health and social care. The site provides a single place where all information standards can be located, along with valuable supporting material, such as e-learning, implementation guidance and case studies. It also enables users of the site to become active participants in the development and appraisal of standards, by providing the means to share material, draw on each others’ experiences and engage in discussions about existing and potential future standards.

TRUD is pleased to support this new venture and recognises the importance of engaging with information standards professionals across health and social care. The site provides a single place where all information standards can be accessed, along with valuable supporting materials, such as e-learning, implementation guidance and case studies. It also enables users of the site to share material, draw on each other’s experiences and engage in discussions about existing and potential future standards, collections and extractions.

The site’s scope and design will evolve continually to meet the needs and preferences of the community, so we encourage you to become active users and help shape its future development. It is the intention that the site will be an integral part of the assurance process for information standards and collections, details of which will be made available on the site in due course.

Dr Ken Lunn, Director of Information Standards Delivery, said:
"We have supported the creation of the infostandards.org website because openness and increased engagement with end users can only improve the development, delivery and adoption of effective information standards. Standards are essential to the delivery of improved, digitally enabled health and care services and by collaborating with the wider community we can tackle together the challenges we all face. I look forward to seeing how the site will be used by the community."
In support of implementation of the NHS dictionary of medicines and devices (dm+d) the Pharmacy Terminology team are currently updating some of the dm+d implementation guidance. Following feedback from the community a starter guide to dm+d providing an overview of dm+d, an explanation of the Standard, how it relates to the SNOMED CT UK Drug Extension and some fundamentals on content, structure and the release itself has been drafted and is available for comment on infostandards.org.

http://www.infostandards.org/topic/prescribing/dmd-draft-user-guide-available-for-review

The guidance is not currently ready for formal consultation but we would value your input at this juncture to see if the contents are useful and useable.

Questions about www.infostandards.org can be sent to info.standards AT hscic.gov.uk and via twitter where you can follow us @infostandards

Regards

The TRUD support team
Health and Social Care Information Centre