care.data: too much information?

individual

INTERPERSONAL : SCIENCES
humanistic ------------------------------------------- mechanistic
SOCIOLOGY : POLITICAL

group

individual - person ethics 'personal' My identity:  lost in numbers Vs. specificity of patterns *my attitude to my 'sensitive' information health literacy personal responsibility, self care, quantified self my understanding of care.data Trust	datasets, BIG data hospital episodes, treatments research privacy research  anonymising process for nhs data *care.data is a natural step towards personalised medicine? axon - neurobiology Axon - data warehouse statistics service development and innovation
	data security, law, information governance NHS commercial, contract potential for abuse - assumptions public mental health public health policy, consultation policy communication public engagement, primary care informed consent, opt-out data definitions, standards ISO27001 population, insurance

Additional links:
Allyson Pollock - Protecting confidential patient information and promoting public health research. Three proposed amendments to the Care Bill

Building trust in the use of personal data for medical research, 1 April 2014, AMRC

Image source:
http://www.contactmusic.com/press/maximo-park-announce-new-album-too-much-information-released-3rd-february-2014

ERCIM News No. 97 Special theme: "Cyber-Physical Systems"

Dear ERCIM News Reader,

ERCIM News No. 97 has just been published at http://ercim-news.ercim.eu/en97

Special theme: "Cyber-Physical Systems"
http://ercim-news.ercim.eu/en97/special/

Guest editors:
- Maria Domenica Di Benedetto, University of L’Aquila, Center of Excellence DEWS
- Françoise Lamnabhi-Lagarrigue, CNRS, Laboratoire des Signaux et Systèmes
- Erwin Schoitsch, AIT Austrian Institute of Technology/AARIT.

Keynote: "The Importance of Cyber-Physical Systems for Industry" by Clas Jacobson, Chief Scientist for United Technologies Systems & Controls Engineering, USA

This issue is also available for download as:
pdf:  http://ercim-news.ercim.eu/images/stories/EN97/EN97-web.pdf
epub: http://ercim-news.ercim.eu/images/stories/EN97/EN97.epub

Next issue: No. 98, July 2014 - Special Theme: "Smart Cities"
(the call will be published shortly at http://ercim-news.ercim.eu/call)

Thank you for your interest in ERCIM News.
Feel free to forward this message to others who might be interested.

Best regards,
Peter Kunz
ERCIM News central editor

Includes:
Optogenetics to Unravel the Mechanisms of Parkinsonian Symptoms
Big Data in Healthcare: Intensive Care Units as a Case Study
SEMEOTICONS: Face Reading to Help People stay Healthy

--------------------------------------------------------------------------------------
Cor Baayen Award 2014: Nominate a promising young researcher. Deadline: 30 April
http://www.ercim.eu/activity/cor-baayen-award
-------------------------------------------------------------------
ERCIM "Alain Bensoussan" Fellowship Programme
ERCIM offers fellowships for PhD holders from all over the world. The next round is open. Application deadline: 30 April 2014 http://fellowship.ercim.eu/

Follow us on twitter http://twitter.com/#!/ercim_news
and join the open ERCIM LinkedIn Group http://www.linkedin.com/groups/ERCIM-81390

Drupalcamp London 2014: The Government Digital Service, Drupal 8 Multilingual features, Twig

Flood hack

DrupalCamp London today got underway with a keynote Delivering User-centred Digital Services by Mark O'Neill from the UK Government Digital Service.

Given the record of public and private sector led IT projects it was refreshing to hear of the GDS's approach being user-centred, the extension of 7 design principles and Mark's previous experience. It's clearly too late for the health care sector to coin and create the Needotron - GDS beat us to it.

Drupal 8 is looking formidable both in its potential and the (learning) stack it presents. Another great session to pick out was - A whole new world for multilingual sites in Drupal 8 by Gábor Hojtsy. The progress here is phenomenal and even though incomplete it is a major achievement and a credit to the Drupal community.

It's humbling as it reminds me to post some introductions to Hodges' model on W2tQ in several languages.

As to being user-centred, the Harmony Forum is a real tease. I know a forum will not moderate itself (is that the new Sorcerer's Apprentice?) and yet time is of the essence. Harmony is one for me to watch - so I'm signed up for the newsletter. Two sessions on Twig and Entities rounded up a busy few days.

This began on Thursday with Cutty Sark, the Royal Greenwich Observatory (learned much from their interactive designs), Turner and the Sea, The British Library - Beautiful Science (60-90 mins ample), and Ibsen's Ghosts at Trafalgar Studios.

I was also able to visit a university yesterday and meet a member of faculty who used Hodges' model many years ago. Here's hoping that some of the materials can be retrieved even though it seems unlikely. I hope to keep in touch with this nursing contact (and not just for the dinner!). I've met several other people here, the Drupal community is another great asset - and with thanks to the sponsors who make these events feasible for many of us.

Output from Needotron

I'll end this post back with Mr O'Neill and the GDS.

I wonder to what extent healthcare figured in the flood deliberations?

It seems that an output from the Needotron may not be so far removed from h2cm?

Happy St David's Day too - in the closing minutes here!

Better information means better care

BBC Radio 4: Inside Health 21 January 2013

Margaret McCartney and Mark Porter ask whether the anonymity of patient records on a new NHS database can be guaranteed?

NHS: Your records:

Using information about the care you have received, enables those involved in providing care and health services to improve the quality of care and health services for all. The role of the Health and Social Care Information Centre (HSCIC) is to ensure that high quality information is used appropriately to improve patient care. 

NHS England has therefore commissioned a programme of work on behalf of the NHS, public health and social care services to address gaps in information. Our aim is to ensure that the best possible evidence is available to improve the quality of care for all.  ...

http://www.nhs.uk/NHSEngland/thenhs/records/healthrecords/Pages/care-data.aspx

INTERPERSONAL : SCIENCES
humanistic ------------------------------------------- mechanistic
SOCIOLOGY : POLITICAL

individual

my interests	scientific interests
social interests	commercial interests

group - population