Heat maps and hotbeds in Hodges' model

individual
INTERPERSONAL : SCIENCES

humanistic ------------------------------------------- mechanistic

SOCIOLOGY : POLITICAL

group

	"Out of area placements are a good indicator of heat within the system and how over-stretched it is." p.5 Prof. Paul McCrone, Lintern (2014).

Sources:
Image: http://www.usability.gov/sites/default/files/images/eye-tracking-full-option1.jpg

Lintern, S. (2014) Analysis reveals mental health trust funding cuts, Health Service Journal. 124, 6411, 4-5.

For portals, speak patients' language ( c/o Healthcare IT News )

Mike Miliard's 

For portals, speak patients' language 

in Healthcare IT News is a reminder of accessibility and engagement at the level of a communities languages.

This is one of the reasons why I am committed to using Drupal, to try to make use of its Internationalization capabilities amongst others. 

Thanks to Mike's post I'm now familiar with a 'full court press' as a hospital - enterprise wide no less - seeks to achieve defined patient engagement levels by accessing their electronic health record.

This begs the question of what constitutes the patients' language? I don't just mean the purely linguistic forms of Chinese, Korean, Russian and Greek mentioned in the article. The effort is driven by the statutory demands of meaningful use, but what of the patient's general literacy, IT and health literacies? How do patients make sense of their own health (or another in the role of a carer) not just in a given language, but culturally from a medical sociological and public health perspective? What is the community's vocabulary when it comes to health?

How can we assure that meaningfulness? How can we affirm that use and critically translate use into patient benefits and self-efficacy?

You could also entitle Mike's article as

4 portals speak patients' language

individual

INTERPERSONAL : SCIENCES

humanistic ------------------------------------------- mechanistic

SOCIOLOGY : POLITICAL

group

Health Literacy, Accessibility	Measures (health literacy, patient engagement, health and well-being, clinical outcomes)
Cultural Diversity, Languages, Carer	Internationalization 'Meaningful Use', Standards, Legislation, Policy

When we focus on languages we must remember that listening is a great gift. Whether as health and IT professionals, educators, patients and carers, listening to the care domains can help us integrate diverse social, clinical, policy and technical objectives.

What do these portals say to you?

Mike Miliard twitter

From: Slow is beautiful (Bloomstein, net, July 2014)

The quotes below are from a one page article in the July issue of net magazine. The message is that while efficiency in online experiences is critical especially in ecommerce and business there is still a place for 'slow' and content that asks questions (I hope so):

"Second thoughts undermine efficient ecommerce experiences. But if we only value efficiency, we ignore opportunities for learning and validation that characterise effective, less transactional experiences.

... (How several brands - "Foster Good Decisions")

DESIGN FOR QUESTIONS

These content types and design patterns aren't necessarily the fastest way for users to complete transactions. Instead, they help users engage with purchases with greater confidence, satisfaction and certainty. When content pushes us to weigh options and wrestle with difficult concepts, it pushes us to ask questions - and place greater weight on their answers."

It does not take a giant leap of imagination to consider this in health and social care contexts?

Margot Bloomstein, .net, July 2014, Issue 255, p. 42.

Drupalcon Portland session: Collaborative Learning Systems in Drupal & tpm

I'm still following Drupal here in NW England and around Europe since version 4.7. The next Drupalcon is in Prague next month and I'm all set. As what seems a lifelong learner of Drupal there are usually many sessions of relevance to me. There's repetition creeping in too (at Munich last year), which is a good sign for me. Perhaps it's a sign of Drupal's maturing but there are sessions of specific interest in health and education. This week the program for Drupalcon Prague starts to really emerge.

Until the 13th when the program appears, there was an educational-learning example from Portland in May 2013 embedded below, by Avram Sand and Fabian Franz. The introduction for which begins...

How can you use Drupal to add value to a Learning Management System? In this case study we will show how Trellon helped Population Services International (PSI), a leading global health organization, build a collaborative learning environment using common Drupal modules.

There are some great pointers in this session, modules to consider and insights into functionality.  Whatever TLA is employed - LMS (learning management system), VLE (virtual learning environment), TEL (technology enhanced learning) ... the lessons are transferable.

In the latest edition of the philosopher's magazine tpm 3rd Quarter there's a paper on TEL by David Mossley and Clare Saunders: A revolution in philosophy teaching? (pp. 40-45). Mossley and Saunders argue the case for tempering our expectations of TEL, framing their article around constructivism:

... TEL, presents entirely new and exciting learning environments which students can engage with in more ways, with greater self-motivation, and with more creative possibilities than ever before. If constructivist pedagogy is right, thr more "engagement" with a perfectly modelled environment of ideas in a virtual space a student can enjoy, the higher the quality of their learning experience will be; for they will be presented with just the "optimal" set of experiences needed to create their won meanings appropriately. However, once we start to analyse what the word "appropriately" might mean in this context, we suggest this starts to point us toward a different way of thinking about epistemology and pedagogy. p.42

More positively, they conclude that - technology enhanced learning:

... can and does furnish new spaces and opportunities for social learning - it opens up new avenues for us both to practise and enhance further our philosophical knowledge and capabilities and (thereby) to co-create the future of philosophy and of knowledge more broadly. p.45.

Mossley and Saunders also refer to Hegel's idea of Bildung:

describing education as the bringing into harmony of all one's thoughts, experiences, activities and practices in existing contexts; that is, education as shared approaches to ways of making meanings, of gaining competence, based on the meanings explored by others before us. p.43.

Here is another avenue to support the role of Hodges' model in education and practice.

Sheffield, UK: Critical Writing Bursary - re. Design4Health Conference

Interface @ a-n The Artists Information Company is pleased to offer a Critical Writing Bursary to visit and write about the Design4Health Conference at Sheffield Hallam University. The bursary includes £150 and a free three-day conference pass (worth £495). It includes lunch on all three days, plus the conference networking dinner on Thursday evening) to enable one writer to visit and review Design4Health Conference at Sheffield Hallam University.

 

Full details at www.a-n.co.uk/interface/article/3389752

 

To apply, please email interface@a-n.co.uk by 5pm on Monday 10 June with a short statement of no more than 200 words outlining your interest in the conference and exhibition. 

 

Apologies for cross posting. Please circulate to students and colleagues.

__________________________

 

Kirsty Christer - Research Publications and Events Officer

Art and Design Research Centre, Sheffield Hallam University, UK

e: k.a.christer at shu.ac.uk | t: +44 (0) 114 225 6918 | f: +44 (0) 114 225 6702 | www.design4health.org.uk

D4H accommodation page: http://bit.ly/ZqdQff

 

 

H5P framework: rich content and applications in Drupal

If I ever get to create a new site devoted to Hodges' model it will be an enjoyable experience. A couple of weeks ago I learned of a framework H5P (also a file format) that can be integrated into Drupal to create content types for educational purposes.

In addition to the archive material on the model, it is important to offer students a means to test their knowledge. This might involve a trial of several modules, including H5P:

H5P is a framework for creating HTML5 content and applications that can be easily moved between web-sites. H5P facilitates sharing and reuse of code used in rich content and applications. H5P also includes an authoring tool so that H5P content may be created and edited using a web-browser.
Organizations and governments spend millions of dollars creating rich Internet content, games and applications. The code used may be shared here on h5p.org as libraries so that others may fill in their own content and reuse the code.

Drupalcon Portland is now underway and I'm looking forward to tuning in live and following sessions, starting with Dries' keynote. This should begin at 7.30pm here in the UK. Drupalcon Munich seems ages ago now (4.7 even longer ..! ) and suddenly Prague is on the horizon.

Additional link:

Quiz Questions Import for Drupal 7 released

Drupalcon Munich 2012 [ii]

I've greatly enjoyed a talk by Mark Boulton before at Drupalcon and as a contributor to LHC@Home this collision of the Internet's birth, Drupal, web design and high energy physics was not to be missed.

I'd heard of the LHC experiments before, but not the fact of there being four [how could I miss that ;-) ].

Mark explained about his work with CERN, the legacy site, the culture and the creation of a new site he has been tasked with in Creating Wonder. The Facet API for search and resort to personas to identify and appreciate the needs of the sites users proved key tools. There is quite a coincidence here in that CERN's user communities reflect the potential audiences I envisage for h2cm. One allied to each of the knowledge domains on the old site:

Students and Teachers (SCIENCES)

General Public and Carers (SOCIOLOGY)

the Patient, Client (Inter- Intrapersonal)

Policy Makers, Managers and Citizens (POLITICAL)

Mark also explained some of the ways he has differentiated content across the CERN community and its organisation. All very helpful advice.

Maintaining the design angle, Morten Birch Heide-Jørgensen delivered Theme < 3 drupal in his usual irascible style.

I r a s c i b l e  here means - 

insightful, Röyale, accessible, singular, commonsensical, inspiring, besuited, and leading edge.

If there is a nightmare in learning Drupal apart from the learning curve and sound of the rolling rock (ppuuussshhh!!), it is the nature of the markup that Drupal currently produces. Morten explained his frustration with the problem of DIV-itis and his resolve to address this producing a theme - Mothership which seeks to get the markup right. There are other ongoing challenges and how they will be resolved in Drupal 8, accessibility and HTML5.

As we contemplate the various processes set to try us, we become accustomed to the notion of 'lead time'. Morten's highlighting the 'time lag' in the latest and greatest HTML and CSS compared with Drupal releases was a very helpful dose of realism.

Mustn't forget Morten's fun delivery - this helps the medicine go down. In addition to the sessions there were many contacts made, people I really do hope to meet again.

More to follow.

Additional link:
BBC 2 Horizon: How Big is the Universe?

Drupalcon Munich 2012 [i]

Drupalcon Munich 2012 Group Photo

Well another European Drupalcon has been and gone. It was an awesome event in Munich; the venue, sessions, organisation and the community. It all proved a brilliant experience even without the night time thunder and lightening.

I'm not sure if this particular sponge is saturated to its limited capacity, but compared with previous years I took fewer notes and haven't posted as yet. The (glaring) take home lesson for me remains the same. Write less: do!

The notes I do have started after the first keynote by Dries Buytaert on the State and future of Drupal. Personally, I prefer a presentation rather than the interview format. A change in format must be a relief for Dries and for circuit regulars, but despite a visual interlude the social negotiation seemed for me to get in the way of the show and tell. Given that though Drupal is a year aware from the next release, so this reduces the 'news'. Portland 2013 will no doubt be literally more telling.

I did scribble some ..., on Entities and Properties and attending How to Dominate the Theme Layer. Useful to consider that the visual hierarchy may not match the outline of your site in terms of information architecture. The idea of styling now and injecting classes later has much appeal. I am enthralled by the prospect of font selection, colour and other site design aspects.

There were several sessions on Multilingual sites in D7 & D8. The pros and cons of node level translation vs. field level translation were explained, the latter being considered the best model for most use cases and set to be the likely default in D8. Given the cons of translation and the need to keep it simple I would set about limiting translation to Brian Hodges' original course notes and a new introduction to h2cm. Another key question referred to the type of experience you are building - is it totally symmetrical or asymmetric?

More to follow. 
Photo source:
http://blog.erdfisch.de/2012/08/drupalcon-munich-2012-opening-drupal-association-and-international-communities

Personal Health Records: Part II - revisiting Kim and Johnson 2002

Part I continued ...

What Kim and Johnson reveal is a level of transience that can be quite scary in this context. True, electronic health records can be archived and printed, but the latter surely defeats the purpose of the 'e'. Printing undermines the credentials. The virtual landscape presented in part I by checking the current status of these domains highlights the issue of ownership of data in a way that has provoked much debate in social media and the transferability of a person's data - information. If I want to move to another vendor, system, company (however the 'entity' is described) there needs to be standards and a degree of interoperability to facilitate this. 

Next, we have to bow to the notion of a year on the internet compared with 'real time'. M-health was a dream a decade ago. Here is another pressure on the PHR and its family members. A public-facing health record, whatever its nomenclature, must not only be responsive to the public and professional users and the 'total stakeholder community'. Now the record must be responsive according to device: from desktop, to tablet through to mobile phone.

In 2002 the PHR project was set to run and run. It had a slow, strong pulse with speedy recovery after exertion. The PHR looked fit for Olympic^* endeavors.

But then the algorithms set to change personal health care (to fuse ill-health and well-being) suffered a major arrhythmia. The fate of those who became the new PHR frontrunners, the heavyweights no less: NHS's Healthspace, the initiatives of Google and Microsoft suffered the same fate. This post is from 2009:

Self-care in e-space and the need to Impress

Given the changes since Kim and Johnson you have to wonder what the next decade will bring. Whatever there will still be fog, but that just adds to the excitement as we climb the trees. Then we realise that to all of the users of health information systems (remember the user and stakeholders?), whichever TLA is employed, they are all X-HRs by proxy.

Kim MI, Johnson KB. Personal Health Records: Evaluation of Functionality and Utility. Journal of the American Medical Informatics Association. 2002. Mar-Apr; 9(2):171-180. Selected for inclusion in the IMIA 2003 Yearbook of Medical Informatics. 

 ^*All trademarks acknowledged.

Oxford Drupal 'Education' Camp 22 - 23 June 2012

I have booked a holiday for Friday 22 June because as their website announces -
 Oxford Drupal 'Education' Camp is happening!

Venue: St Catherine’s College, Oxford.

I'm hoping to meet people from other Drupal events and specifically from Drupalcamp Cambridge. Although Drupal is far from a dedicated educational platform - either for authoring materials and managing learners / learning - there are many contributed modules that can be adapted and extended.

One of the three papers mentioned last week will be published by an online journal in June. News of the other two must wait, one is an end-of-year prospect. Although an abstract and preparation for the ICN Congress (if accepted!) is a non trivial undertaking, further writing must fit in with future web developments. This Drupalcamp will help bring several threads together.

Personal Health Records: Part I - revisiting Kim and Johnson 2002

When I was at HC2004 or 2005 I was given a copy of the Medical Informatics Yearbook 2003 from the British Computer Society - Nursing Specialist Group stand. Within this volume of key papers for the year April 2001 - March 2002 I found the following:

Kim MI, Johnson KB. Personal Health Records: Evaluation of Functionality and Utility. Journal of the American Medical Informatics Association. 2002. Mar-Apr; 9(2):171-180. Selected for inclusion in the IMIA 2003 Yearbook of Medical Informatics. 

The paper identified candidate Personal Health Records [PHRs], then developed criteria examining the entry and display of data elements necessary for the PHRs to serve as adequate representations of information. Then in the final third phase a selected group of PHRs were assessed for their functionality and utility (p.370). Of the 12 PHRs assessed I thought it would be interesting to check  their current status (this was a quick visit to the published domains).

Several Personal Health Records 2002 - 2012

Web Site	Record	URL	Findings
Dr. I-Net	My Medical Record	www.drinet.com/	A good start! Still operational domain redirects from original www.aboutmyhealth.com Continues to offer a PHR.
HealthCompass:	Lifelong Health Record	www.healthcompassnet.com	While there are several site using 'Health Compass' the original version was not obvious.
MedicalEdge	Medical Register	www.medicaledge.com/	Domain currently offers support to physicians, so a PHR may be part of a package?
MedicalRecord.com	Your Medical Record	www.medicalrecord.com	This now appears to be a directory to electronic medical records.
MedicData	MedicData	www.medicdata.com/	This does not appear to offer a PHR and the homepage is 'under construction'. It looks like the domain may have a new owner.
Medscape AboutMyHealth	Personal Health Record	www.aboutmyhealth.com/	Now leads to GE Healthcare.
myhealthnotes.com	Personal Health Manager	www.myhealthnotes.com/	Server not found.
PersonalMD	My Medical Records	www.personalmd.com	Retired - leads to: www.eheandme.com/personalmd_announcement.html
TheDailyApple	Health Records	www.thedailyapple.com/	Social networking is vital to well-being but no PHR here.
VistaLink	Health Profile	vistalink.com	Domain for sale.
WebMD	WebMD	www.webmd.com/	Very much alive and kicking commercially, but my health record / PHR not in immediately in evidence.
Wellmed.com	Health Record	www.wellmed.com	This site leads to http://www.webmdhealthservices.com/

Kim and Johnson provide several lessons as a high quality contribution to the medical informatics literature. From the above we see that while we talk about timeliness in terms of the written record, time takes on a series of new meanings when it comes to electronic records, media, commercial companies and clearly the internet.

As I read the paper and reflected on the past decade other things fell into focus. At the end of the day a PHR should be what it says - personal. Reading Kim and Johnson this did not stop them looking at the PHRs from the perspective of doctors and informatics practitioners. There is nothing wrong with this. Although developers and political masters quite rightly seek to engage with the user, espouse usability and user testing - a system is aimed at a community.

If title [personal] follows function [record] and form [electronic] follows function then what do we have?

Don't worry if you're lost, me too (I'm musing again); let's add the fog....

It's crucial to know what's going on over the fence (similarly sometimes it helps to climb a tree). In this case the person in the form of patient is not the only consumer of the information in the record.

This is the point: systems are about a user AND a stakeholder community. Stakeholder is a much maligned word, found on the lips of those seeking to reach and engage remote ('difficult' to reach) community groups. It has a definite role here though.

Every health discipline has its record, that is a professional must. So in effect you have a series of 'X' -HRs. On paper they were - and remain in many cases - a mess. What we should have then is a hybrid health record that depending on the user morphs itself accordingly. But what is the point in pointing to users and stakeholders? Well, conceptually how far is personal from medical (nursing...) and how far again to personality? Add to the mix the question of where patient, well-being and health fit in to the management of long term medical conditions as per the critieria of Kim and Johnson, accurate entry of medicines, medical conditions, lab tests, monitoring ... and you see what is frequently a record breaking task.

This is (or was*) the challenge: to transform something that is generically personal (with the potential contradiction this implies) to something that is personalised as in 'I'.

*Part II to follow.

Call for chapters - Human centric visualization: Theories, methodologies and case studies

[Shortened for length from original post to ubicomp.org]

*** CALL FOR CHAPTERS  ***
Proposal due: Feb 24, 2012
Notification due: March 09, 2012
Full chapter due: June 15, 2012

A book edited by Tony Huang (CSIRO ICT Centre, Australia), to be published by Springer: www.springer.com
Web: http://www.wikicfp.com/cfp/servlet/event.showcfp?eventid=19780%A9ownerid=14065

1. Introduction

Visualizations (diagrams) are produced for people to make sense or interact with them. Rapid advances in display technology and computer power have enabled researchers to produce visually appealing pictures or compelling visual environments to end users. However, the effectiveness of those pictures in conveying embedded information to the users and impact of visual environments on humans have not been fully understood.
This book addresses issues related to design, evaluation and application of visualizations from a human centric perspective. This cutting-edge book is an edited volume whose contributors include experts worldwide, from diverse disciplines including psychologist, artists, engineers and scientists.
Academics, students, engineers and consultants will find this book useful for both research and engineering purposes.

2. Recommended topics include, but are not limited to, the following:

Part I: Introduction and overview

Current status and future challenges of visualization methods
Current status and future challenges of human centric visualizations research
Survey of evaluation methods in visualization
Survey of theories, frameworks, models, heuristics and design principles for visualization

Part II: Theories, models, frameworks, heuristics and design principles for human centric visualization

Theories of visual thinking, diagram perception, cognition and reasoning and their applications
Latest developments toward theories of visualization
Latest development of frameworks, models, heuristics and design principles for visualization
Applications of the theories, frameworks, models, heuristics and design principles
Adaptations and applications of theories from other domains in visualization

Part III: Methodologies for design, development and evaluation of human centric visualization

Approaches and practices of visualization design
Evaluation methods
Measurement metrics
Taxonomies of tasks
Design and evaluation frameworks
Development and validation of methodologies
Application of methodologies
Lessons learned and experience obtained in developing and applying methodologies

Part IV: Case studies of human centric visualization

Human factors (e.g., memory, cognitive ability, gender, individual differences)
Visual perception and cognition
Visual analytics
Social, cultural aspects of visualization
Implications of new technologies (e.g., displays, new media) on humans
User experience
Implications of interactive methods on humans
Implications of new visualizations on humans
Roles of human in collaborative visualization
Use of visualizations for decision making, learning, business, software engineering, science, security, biology, design, construction, cartography, etc.
Visualization in virtual reality/mixed reality/augmented reality
Case studies and evaluations of interfaces, systems and prototypes of visualizations
Lessons learned and experience obtained in evaluating and designing visualizations
....

4. Important dates

Proposal due:  February 24, 2012  (Proposal has no length limits, usually should include motivations, method, contributions and a brief outline of the full chapter)
Notification: March 09, 2012
Full chapter due: June 15, 2012
Full manuscript due to publisher: August 1, 2012
Book publication: October 1, 2012

5. Contact

All submissions and inquiries should be sent to:
Tony Huang
CSIRO ICT Center, Australia
Email: whua5569 AT gmail.com