Showing posts with label law. Show all posts
Showing posts with label law. Show all posts

Thursday, 9 October 2014

Privacy: Open Data, Individual and Group

The vertical axis of Hodges' model is the individual - group, or self through to collective. Health and social care constantly negotiates this from the ideals and delivery of person-centred care to public mental health. So often for health professionals the emphasis is on the individual, the person's care needs, their strengths, their rights, outcomes and feedback on care received. The same individual focus is also ascribed to records and information. Protection of data, maintaining confidentiality is an essential duty of health care  professionals.  

Earlier this year the government's care.data scheme was placed on hold. 'Open' is the way of the world: open access, open source, open data and open government. Increasingly the group as an entity needs to considered in what may be a new way, as Floridi writes:
The idea that groups may have a right to privacy is not new, and it is open to debate, but it has not yet received all the attention it deserves, although it is becoming increasingly important.
 ...
Open data is more likely to treat types (of customers, users, citizens, demographics population, etc.) rather than tokens (you, Alice, me), and hence groups rather than individuals. But re-identifiable groups are ipso facto targetable groups.It is therefore a very dangerous fallacy to think that, if we protect personal data that identify individuals, the protection of the groups will take care of itself. p.23.

Luciano Floridi. Group Privacy. The Philosophers' Magazine. Issue 65, 2nd Quarter 2014. Pages 22-23.


http://grantabooks.com/The-Private-Life

Here is a related book (on my list) a BMJ award winner:

The Private Life, Josh Cohen

The war over private life spreads inexorably. Some seek to expose, invade and steal it, others to protect, conceal and withhold it. Either way, the assumption is that privacy is a possession to be won or lost.

But what if what we call private life is the one element in us that we can't possess? Could it be that we're so intent on taking hold of the privacy of others, or keeping hold of our own only because we're powerless to do either? ...




Tuesday, 12 August 2014

Disobedient Objects

individual
INTERPERSONAL : SCIENCES
humanistic ------------------------------------------- mechanistic
SOCIOLOGY : POLITICAL
group



personal ethics



objects

social justice


The Victoria and Albert Museum 26 July 2014 – 1 February 2015
Disobedient Objects:
From Suffragette teapots to protest robots, this exhibition is the first to examine the powerful role of objects in movements for social change. It demonstrates how political activism drives a wealth of design ingenuity and collective creativity that defy standard definitions of art and design.

Image source: Inflatable cobblestone, action of Eclectic Electric Collective in cooperation with Enmedio collective during the General Strike in Barcelona 2012.
© Oriana Eliçabe/Enmedio.info

Saturday, 21 June 2014

disABLED: What's behind a symbol?

individual
INTERPERSONAL : SCIENCES
humanistic ------------------------------------------- mechanistic
SOCIOLOGY : POLITICAL
group

NY State

Well done NY excellent MOVE!
(and hope to visit next year)

My source: James Moore, Clash of Symbols, The Independent 20 June 2014, p.35.
 
Image source from upper right:
http://in-abled.com/blog/2014/04/would-martin-luther-king-jr-care-about-disabilities/
http://en.wikipedia.org/wiki/Disability

Saturday, 10 May 2014

Genetic disorder: belief's a-gender

individual
INTERPERSONAL : SCIENCES
humanistic ------------------------------------------- mechanistic
SOCIOLOGY : POLITICAL
group

Y
I tell you what you will believe and IF you can have an education!
X
Wither women in science and engineering?
X
Whose place is this?
'Who' is the community?
Y
Human Rights for Girls and Boys

Saturday, 8 March 2014

International Women's Day 2014 “Equality for women is progress for all” He for She

8 March is International Women’s Day, #IWD2014! 

This year, the theme is “Equality for women is progress for all”.

http://www.unwomen.org/en/news/in-focus/international-womens-day#webcast


In order to achieve gender equality, we have to change what it means to be a man. For International
Women’s Day [@UN Women] highlights in its #HeforShe initiative men leaders who stand up for gender equality.
“Women’s empowerment works for men, too. Where men and women have equal rights and opportunities, societies prosper. I am a He for She.”
-Ban Ki-moon, UN Secretary-General. 

See what other prominent men from around the world have to say:
http://owl.li/ucuvz #IWD2014

Wednesday, 12 February 2014

Joint Strike Care F-4(5)

INTERPERSONAL : SCIENCES
humanistic ------------------------------------------- mechanistic
SOCIOLOGY : POLITICAL

individual(?)











Social Reflections on Power
Joint Strike Fighter F-35 Lightning II
group - population

Saturday, 4 January 2014

Ballets of corporate, Governmental, Social and Individual conscience

INTERPERSONAL : SCIENCES
humanistic ------------------------------------- mechanistic
SOCIOLOGY : POLITICAL

individual
c ons cien ce
Health services and services infrastructure



Why do we pay taxes as a society?


2012
Apple UK turnover £1,178m
Corporation tax paid on UK profits £1.7m
(2011: £1,013m £15.7m)
group - population


Q. Does the current state of corporate taxation globally influence the scope, efficacy and ability of governments and WHO to recommend and direct global public health and positive health promoting policies?

My source: Houlder, V., Pickard, J. (2014) Tech giants' £54m bill fuels tax row, Financial Times, FT Weekend, 4-5th January, 2014. p.1.

Saturday, 16 November 2013

[hifa2015] How can we stop ICANN decision that could profoundly damage global health?

Dear HIFA colleagues,

A few weeks ago I posted the Lancet article below, which highlights the threat of a commercial sale of the new top-level domain ".health".

The authors point out that ICANN (Internet Corporation for Assigned Names and Numbers), which controls all internet naming, could be about to make a decision to sell ".health" to the highest commercial bidder. The decision is imminent. I have indeed heard that an ICANN meeting that will include discussion of ".health" is being held over the *next few days*.

As the authors of the Lancet article point out, sale of ".health" to a commercial enterprise "could have a profound effect on health information access and quality for generations to come". This is something that should concern all of us, everywhere.

ICANN hosts a wiki which apparently can only be edited by them and which briefly describes the issue in rather difficult-to-follow language, without actually explaining the nature of the objections that have been raised by leading health organisations, including WHO, and by national governments:
http://icannwiki.com/index.php/.health

These objections may be found elsewhere by googling. Essentially, there is a *great* deal of concern among health agencies worldwide, and a small handful of governments, of the public health consequences of commercialising ".health". In particular, there will be little if any assurance that the content of websites carrying the ".health" domain name will contain reliable health information. There is a serious risk that misinformation and/or commercially biased information could be propagated using the ".health" suffix. It is likely that many citizens worldwide will see the ".health" suffix as an indication that the information is primarily intended for their health, whereas the reality would be that much of the information would inevitably be wholly unreliable, and driven by commercial (or even ideological) motives.

I was especially concerned to read the latest news on this wiki, which read as follows: "The IO [Independent Objector - see below] lost its objection to Afilias' applicant for .health in a ICC determination by 3 panelists made on 6 November 2013. The determination was the first Limited Public Interest Objection to be decided, as well as the first objection filed by the IO to be decided. [19]

I am not entirely clear how the proceedings work, but the wiki tells us that "[ICANN's Independent Objector] is an appointed authority on international law whose role is to object to strings on the grounds of Community harm and Limited Public Interest were detailed in the applicant guidebook. His objections are official objections and are funded by ICANN, though his office is otherwise independent. Reasons for the specific case against .health were not initially given, but, in the case of Limited Public Interest, "the applied-for gTLD string must be contrary to generally accepted legal norms of morality and public order that are recognized under fundamental principles of international law. The expert panel appointed by the ICC will base its decision on the existence of such a contradiction." The applied for string must threaten an incitement to violence of lawless action, discrimination, child pornography, or "be contrary to specific principles of international law as reflected in relevant international instruments of law.""

This reference to "violence of lawless action, discrimination, child pornography..." is bizarre and I cannot claim to understand how this is relevant. What is at issue here is the availability of reliable versus unreliable healthcare information. I hope that others on HIFA may be able to enlighten us further.

Regrettably, there has been an almost total absence of advocacy and awareness-raising about the issue, apart from The Lancet article. Other than the authors of the Lancet article, there is no advocacy leadership of which I am aware. This is the kind of issue that needs a prominent global health leader to speak out. I do not know whether Margaret Chan, Director-General of WHO, is free to speak out on this, but I feel that we need a strong statement from someone at the highest level.

In the meantime, what can we (HIFA members) do to stop ICANN making - or at least deferring - a decision that could profoundly damage global health?

Best wishes,
Neil
HIFA profile: Neil Pakenham-Walsh is the coordinator of the HIFA2015 campaign and co-director of the Global Healthcare Information Network. ...
[ As mentioned above Neil also posted the Lancet article - I have just copied the link below ]

Below is the citation and extracts of a new article in The Lancet. The full text is freely available here:
http://www.thelancet.com/journals/lancet/article/PIIS0140-6736(13)62215-1/fulltext

Ensuring the future of health information online
Tim K Mackey, Bryan A Liang, Amir Attaran, Jillian C Kohler
The Lancet, Volume 382, Issue 9902, Page 1404, 26 October 2013
doi:10.1016/S0140-6736(13)62215-1Cite or Link Using DOI

Monday, 4 November 2013

66,000+1 'cultural sensitivity, political correctness', or +0 real action ?

HUMANistic -------- RIGHTS

context: eradicating female genital mutilation

INTERPERSONAL : SCIENCES
SOCIOLOGY : POLITICAL
individual

psychological effects ...

physical effects ...
socialisation into ...?
intergenerational practices
expectations
social change
education
norms
need for 'cultural sensitivity'
need for ACTION
http://www.dofeve.org/index.html
group - population

Additional links:

C4 TV - The Cruel Cut: A passionate, exuberant exploration of the complex world of Female Genital Mutilation

BBC News: Health professionals must screen for genital mutilation

Image: Daughters of Eve

The Guardian: Report calls for female genital mutilation to be treated as child abuse

Symposium: Zero Tolerance: Eradicating Female Genital Mutilation
A Public Policy Exchange Symposium 13 November 2013 - Public Policy Exchange
Overview
It has been estimated that over 20,000 girls under the age of 15 are at risk of FGM in the UK each year, and that 66,000 women in the UK are living with the consequences of FGM. More than 1,700 victims were referred to specialist clinics in the last two years, with at least 70 women and girls as young as 7 seeking treatment every month. FGM has been a criminal offence in Britain since 1985; however, there has not been a single prosecution to date. Furthermore, since 2003, it has been illegal to aid or participate in arranging FGM to be performed on another person inside or outside Britain.

Sunday, 3 November 2013

Graduate Study in Philosophy/Ethics of Information at the University of Oxford

From: Luciano Floridi - lfloridi at gmail.com

Please circulate

If you are interested in pursuing interdisciplinary graduate study at the University of Oxford in philosophy and/or ethics of information in connection with digital technologies, the Oxford Internet Institute offers:
1. The eleven-month residential MSc in Social Science of the Internet.
Students from a wide variety of backgrounds can combine their interests in philosophical/ethical issues with Internet-related courses in law, policy and other social sciences.
  2. This is for students wishing to undertake groundbreaking, detailed research.
Students are encouraged to ask original, concrete questions and to adopt incisive methodologies for exploring them, in order to help to shape the development of digital realities.
  3. The Summer Doctoral Programme.
This provides top doctoral students from around the world with the opportunity to work for a few intensive weeks with leading figures in Internet/digital research.
For more information, please check: http://www.oii.ox.ac.uk/graduatestudy/

For an initial expression of interest, please send a short CV (max 1500 words) and a short outline of research interests or project (max 1500 words) to:

Mrs. Penny Driscoll, BA (Hons), MA
PA to Prof Luciano Floridi
Professor of Philosophy and Ethics of Information
Oxford Internet Institute, University of Oxford
1 St Giles, Oxford, OX1 3JS
penny.driscoll8 at gmail.com

Tuesday, 15 October 2013

Blog Action Day 2013: Human Rights - Health and Disability

HUMANistic -------- RIGHTS


INTERPERSONAL : SCIENCES
SOCIOLOGY : POLITICAL
individual
Reflecting on Human Rights with Hodges' model
Educating health professionals about disability: A review of interventions
Tom Shakespeare and Ira Kleine suggest health professionals need a better understanding of the health needs and human rights of disabled people. Read the first comprehensive review of educational interventions. (HEA)
Physical (and cognitive) access to info:

Governments are legally obliged to ensure adequate access to health information
The Lancet Global Health, Volume 1, Issue 3, Pages e129 - e130, September 2013
doi:10.1016/S2214-109X(13)70043-3
(HIFA2015)
-ismsDear All, I would like to congratulate the initiative HIFA-Watch about access to health information as universal human right and use this opportunity to share with you an excellent illustration, presentation by video on the Declaration of Human Right, source of inspiration for all. http://www.youtube.com/watch?v=O9chQdZw7Bc
And I use also this opportunity to share with you the Medicus Mundis International discussion paper published today which compares key elements of the concept of Universal Health Coverage as promoted by the World Health Organization http://www.medicusmundi.org/en/contributions/news/2013/mmi-uhc-discussion-paper/uhc-mmi-discussion-paper-august-2013.pdf
With my warmest regards.
Isabelle WACHSMUTH
World Health Organization, Knowledge Management and Sharing
 (HIFA2015)
group - population

Additional links:
Law in Action BBC Radio 4 (see - Interview with Attorney General Dominic Grieve 15 Oct 2013 download available for 28 days)

Conference: Human Rights in Scotland: understanding the challenges and embracing the opportunities 2014

Health and Human Rights: journal

http://hodges-model.blogspot.co.uk/2013/08/an-international-bill-of-rights-of-man.html

Political domain: links

Tuesday, 27 August 2013

Monday, 26 August 2013

An International Bill of the Rights of Man (reissued)

INTERPERSONAL : SCIENCES
SOCIOLOGY : POLITICAL

individual
How do we address the mental
health status of our leaders?
How can science and technology work positively to assure the Rights of All, to secure evidence of war crimes?
Where does the biosphere stand
(side-by-side : hand-in-hand)?
Should war crimes once perpetrated be relegated to cultural memory:
baggage carried forward for generations anew to avenge? How must they do this other than learning (remembering) how to hate?
What are the important lessons; of what must be remembered and what we should forget? 
An International Bill of the Rights of Man
group - population

Saturday, 24 August 2013

50 years "I have a dream..."

INTERPERSONAL : SCIENCES
SOCIOLOGY : POLITICAL

individual
"I have a dream!"Do things and science and technology have to dictate humanity's dreams?
We have a dream...A man had a dream...
group - population

Friday, 21 June 2013

Opaque

INTERPERSONAL : SCIENCES
SOCIOLOGY : POLITICAL

individual
anxiety, mood, anger, frustration, coping abilities, vulnerability, personal communication - masks, poor sleep, helplessness, apathy, personal memory, personal ethics 'Blaze season' - June to September, Smog - duration?, geography, fires, public health, asthma, respiration, bronchitis, conjunctivitis, vision, eye care, cardiovascular system, weather, create rain, environment, daily physical activities of living, ecosystem impact, elderly, young, measures, monitoring,
pollution standard index: 400 1100hrs, stay indoors, building workers, Loss of Habitat
public opinion, quality of life, media, social media, public perception, communication - advice to population, 
(public anger in China over that country's appalling environmental record)
Illegal forest fires, Indonesia, Singapore, Politics,
Commerce, Globalization, Governments, Governance, Diplomacy, Corporations, Regulation, Law, Enforcement, Tourism, Employment, Economic impact, Health Care System Burden, Political Tension, Accountability, Trust, Companies involved? Ecocide (not in Europe)
group - population

Additional source: The Independent Friday 21 June 2013

Monday, 10 June 2013

Eyes, prisms, data, courts and complexes [ in Hodges' model ]

INTERPERSONAL : SCIENCES
SOCIOLOGY : POLITICAL

individual



The court of public opinion

 

The military-industrial complex

Eisenhower 

group - population


Source: Luce, E. US data-intelligence complex emerges from shadow of 9/11, Financial Times. 8-9 June, 2013. p.6.

Images:
Eye: http://www.teamthinking.co.uk/self-awareness/4575076161
Prism: http://rorate-caeli.blogspot.com/2013/06/politics-papal-reminders-looking-at.html


Friday, 7 June 2013

Information Commissioner's Office (ICO) fines Glasgow City Council £150,000

The Information Commissioner's Office (ICO) has fined Glasgow City Council £150,000 for the loss of two unencrypted laptops, one of which contained personal details about more than 20,000 people.

...

An ICO investigation discovered that - despite previous warnings - Glasgow City Council had provided staff with unencrypted laptops after there had been problems with encryption software. At least 74 of these laptops remain unaccounted for, with at least six of them known to have been stolen.

Thursday, 6 June 2013

Government steps in to settle medical dispute over digital patient records - Canada

REGINA - The Saskatchewan government has stepped in to help three Regina doctors who were having problems getting their patients' digital medical records from the clinic where they used to work.

The office manager at the Gateway Alliance Medical Clinic says efforts to get the electronic records from the Midway Walk-in Healthcare Centre had been ongoing for two months.
Robin Anderson says Midway transferred paper files as required by Saskatchewan law, but not the digital records.

http://bit.ly/14xRYgS

My source: Peter Kurilecz - Records Management List

Information and Records Management Society