Bleeding holism

Holistic, integrated and 

person centered care

 is what happens when 

 respect and empathy 

bleed.

after Mondrian: Journey with Hodges through Politics, Sciences and Intrapersonal ...

Prompt: Tate email
Subject: "Journey with Mondrian through Paris, London and New York"

individual
INTERPERSONAL : SCIENCES
humanistic ------------------------------------------- mechanistic
SOCIOLOGY : POLITICAL

group

Image sources (from top left clockwise):
http://upload.wikimedia.org/wikipedia/commons/8/83/Piet_Mondriaan.jpg
http://iws.collin.edu/mizell/mondrian-cubo-grande.jpg
http://www.fondationtanagra.com/en/article/mily-doll-by-gege/page/but-darling 
http://artpause.com/maps/100202-mondrian-style-world-map.html

[ Exclusive* preview ] Wrinkles

individual, dignity, person, memories, identity, security, communication, perception, meaning, friends, belonging, mood, orientation ...	demographics, evidence based care, medication, treatments, physical environment ....
	policy, standards, inspection, training, organisation, safety, governance, management culture, leadership ...

Link:
http://www.arrugaslapelicula.com/

*Person centered?

Extraordinary lives: Demographic influences on academic studies - Life Writing, Life Story Work

Recent reading for studies at Lancaster included
Ethics of Internet Research: Contesting the Human Subjects Research Model

Beyond a week's focus on ethics the above refers to Life Writing:

The study of Life Writing spans many disciplines, and represents 'a fast changing terrain' which is concerned with the study of the writing of lives, encompassing auto/biography as well as aspects of life story that originate outside the written form, such as oral history, testimony, and artifacts such as photography and the visual arts (Jolly, 2001, p. ix). The written text is viewed as a vehicle for an individual's construction of identity, the personal narrative that it records being

…a fundamental means by which people comprehend their own lives and present a 'self' to their audience. (Borland, 1991, p. 71)
...
The multiple approaches taken in Life Writing research can arguably be attributed to the multidisciplinary background of its practitioners. Like Internet researchers, those researching Life Writing have been trained in a variety of disciplines including anthropology, sociology, history, linguistics and literary theory. These various disciplines have contributed a range of insights into the collection of oral history and analysis of the resultant texts (Gluck and Patai, 1991, p. 3). Ethical guidelines for the conduct of Life Writing researchers, such as those published by the Oral History Society in the UK, appear to follow a human subjects model, focussing on the undertaking of the interview, and restricting discussion of the resultant text to issues of copyright. Yet practitioners emphasise the need to remember that as:

…the typical product of an interview is a text, not a reproduction of reality …models of textuality [are] therefore needed. (Gluck and Patai, 1991, p. 3)

What chance is there that Life Writing will be - is being influenced by current demographic and societal trends? Trends and challenges that inevitably present new meanings for history within life and with this new ethical issues? While life writing is clearly an established discipline, how might it develop and what other challenges might apply?

In health and social care Life Story Work is an important part in of assessment and interventions. Has it been discussed, is it appropriate, completed and if so, is this work available and accessible? Do we need people beyond the existing establishment with a dedicated set of skills and knowledge to engage with people diagnosed early on, or will treatments soon make this less of an issue? Will dementia and early dementia especially, with the latest technology prompt new perspectives, or reinforce existing life writing practices? What is an archive? In life story work these people, persons, individuals (and their lives?) are more than subjects.

There are many overlaps already in the mental health state of past and present national leaders, while health services continue to bridge the dementia gap in diagnosis. Biography: world leaders, other recognised lives in Life Story Work and seeking to preserve personal identities in dementia care: clearly these are figures that count.

Reading and writing the minutia of locked doors and windows (still a draught)

Couples, married or not, partners are the cards that frequently, if not by definition, lean on each other beyond the pale, to the n-th degree. Witness so many lessons of what love really is.

They bend and flex. Tested by history, timelines entwined, ties-that-bind, trying to persist in the hear and how.

Their psychological union is challenged as memories become eroded and physically frailty takes hold. Usually; mostly, on the one.

Eventually things, established relationships break and one or the other - should we say: finds themselves in - residential care.

Courtship enables us to become socialised to and with each other and respective families and in some instances other cultures and beliefs.

In this crucial transition sometimes there is learning through experience as respite care is sought.

In other cases health services wonder how this relationship has survived for so long. A crisis is a precipice for change. A chaotic invitation. Radical.

A sudden shift from what was home to a new world of corridors, r, ro, roo, room, rooms; my room? New noises and smells and altered routines and jumbled faces, touches, days and nights

The dolls of childhood are left behind, but may be picked up again literally as an emotional comforter. If not this then perhaps a ‘paper clad dol’ that is bound to be - ‘deprivation of liberty’.

In this new home, this person walks the corridor and inspects the minutia of the doors and windows. Staff pass by(e) waving by their walk - "so-busy-look-no-hands" while trying to be butterflies.

Butterflies that cannot say which way is ‘out’.

They are they. Difficult to follow with eye, head and a hand to catch. The individual recognises the whole of the comings and goings, the main thoroughfare. The strategic point, the nexus of comings and goings.

Something's not right though! I need to be somewhere else.

Sadly (or Usually), there is no going back.

Is there a pattern to this confused-coming-to-terms-with?

From asking repeatedly about being elsewhere, especially with the setting of the sun is there a shift in attempted reasoning? So correct, so responsible all those decades ago. Perhaps even months ago...

If no one will listen to me then perhaps if I have my wife/husband with me then they will see the importance of my cause, my mission.

See look - I have my wife, husband, partner with me now: we really need to go!

Can the residential care home support this person? Can they meet their care needs? They say they are ‘struggling’. Will they need to move – again?

How do they work through this transition? What do we know of how individuals negotiate this transition in their lives? How can we try to understand?

How do they make sense of what has happened, and where they now find themselves? Will their level of distress, agitation gradually extinguish as with their efforts to leave?

As they look to the windows, seek to traverse the doorway, cross the foreign threshold and venture to that somewhere that is not here, we know one thing.

Person centredness lies in the minutia of the life once lived through those locked doors and windows.

We can ‘open’ the doors and windows by travelling with them, together, sharing that journey, the sense of those times and upon returning help them adjust to this new listen and how. Clearly, deprivation of liberty is not a punishment here, yet it demands compensation by provision of high quality personalised care.

The Hundred-Year-Old Man Who Climbed Out the Window and Disappeared

 It all starts on the one-hundredth birthday of Allan Karlsson. Sitting quietly in his room in an old people's home, he is waiting for the party he-never-wanted-anyway to begin. The mayor is going to be there. The press is going to be there. But, as it turns out, Allan is not...Slowly but surely Allan climbs out of his bedroom window, into the flowerbed (in his slippers) and makes his getaway. And so begins his picaresque and unlikely journey involving criminals, several murders, a suitcase full of cash, and incompetent police.
 

As his escapades unfold, we learn something of Allan's earlier life in which - remarkably - he helped to make the atom bomb, became friends with American presidents, Russian tyrants, and Chinese leaders, and was a participant behind the scenes in many key events of the twentieth century. Already a huge bestseller across Europe, The Hundred-Year-Old Man Who Climbed Out of the Window and Disappeared is a fun, feel-good book for all ages.

Image: Sincerely, Anna
Text: Waterstones

New Scientist: Article on Cotard's syndrome [ and Hodges' model ]

Nine years ago, Graham woke up and discovered he was dead.

He was in the grip of Cotard's syndrome. People with this rare condition believe that they, or parts of their body, no longer exist.

... more

INTERPERSONAL : SCIENCES

SOCIOLOGY : POLITICAL

individual

Cotard's syndrome Belief    "I am dead"   delusion (or?) depression      self                                   suicide  "I have no brain"    theory of mind         consc psychotherapy                            senses - taste smell	PET - positron emission tomography ICD 11 - classification?  attempts               'default network mode' iousness          body (parts)        brain function frontal and parietal lobes  anaesthesia  low metabolic activity   physiology
social impact, family, friends, carers sense making  social understanding stigma      interview Jules Cotard (1840–1889), a French neurologist	media      unemployment quality of life   autonomy   control research funding      access to treatment specialist services     referral processes

group - population

Source: New Scientist, 1 June 2013.
Mindscapes: First interview with a dead man

Wikipedia: Cotard delusion

Paralympics: States of Body & Mind

Very Best Wishes to all Paralympians.

Day 6 - Paralympic Torch Relay
The Cauldron is lit in Stoke Mandeville as the FOUR flames unite

Disability is also a State of Mind:

:that frequently marks the beholder.

How does it mark you?

Who do you see?

.... Let us together rejoice in Ability ...

Image c/o London 2012

106? No! That's not the meaning of 'personalised' care [I]

INTERPERSONAL : SCIENCES

SOCIOLOGY : POLITICAL

Person-alised care c/o Andrea, Jamal, Leila, Kareem, Nada, Cassie, Graham, Addy, Gizela, Sandra, Kate, Tony, Em, ...	Diagnosis - dementia, confusion, agitation Care needs include: personal hygiene, dressing, washing ...
Carer - support relationship building trust, empathy, rapport...	106 Policy, Governance, Audit, Outcomes, Feedback, Commissioning, ...

What is the meaning of continuity?

BBC News: Dementia patient 'had 106 carers'.

What really makes us human?

Remembering is fundamentally recursive,
because it involves inserting a past mental state
into the present one.

Michael Corballis
New Scientist, 1st September 2007 p.48-49.

Time Magazine's 2011 'Person of the Year': The Protester

This image released by Time Magazine, Wednesday, Dec. 14, 2011, shows the cover for Time Magazine's 2011 'Person of the Year' issue. The Protester is this year's choice.

Thinking about this recognition of The Protester I believe that -

the Protester is an example of a true holistic practitioner...

INTERPERSONAL : SCIENCES

SOCIOLOGY : POLITICAL

How does an individual decide 'enough is enough'? When does the one act on behalf of the many? What happens when a Person clenches their fist, decides to fight for their rights? In a digital world "NO" and denial of individual human rights is not an answer.	When is the individual a mere 'particle'?  When are they a 'wave'?
The Protester TAKES IN ALL THE CARE DOMAINS.  They reflect -  but they do not see themselves -  they see the future for family, friends, nation: and then they act.	When the State clenches its fist what does it strike?  Who tends to the mental health of the world's leaders? What price for home, land, human rights, education, health information and justice?

MEMO:
TO: The Editor, Time Magazine
FROM: Welcome to the QUAD

Congratulations on your publication and this annual media event. It is fascinating to note the changing cultural, social and political influences evident in the history of 'Person of the Year', most evident in being originally 'Man of the Year'.

I note you have twice selected former president Ronald Reagan in 1980 and 1983 respectively. The former president disclosed that he was diagnosed in 1994 as having Alzheimer's disease. It is quite a coincidence that in-between Reagan's selection the means to a global memory The Computer was appointed as Machine of the Year in 1982. One thought: how many other individuals listed were, or are affected by the dementias?

I believe at some point in the next five years you could do a great service to the many Persons (younger as well as older adults) and their families who are living with dementia in acknowledging them as PERSON of the year.

To people living with this dreadful condition you can help highlight the importance of health, research, funding, policy, socioeconomic impact and most of all - person-hood where it really does matter.

Thank you for your consideration.

Yours Sincerely,

Peter Jones

Sources:
http://en.wikipedia.org/wiki/Time_Person_of_the_Year


http://en.wikipedia.org/wiki/Ronald_Reagan