Consultation on the proposed withdrawal of the SNOMED CT national care planning content

In addition to responding myself, I notice on the actual consultation page on 'Citizen Space' there is an option to share this consultation.

Dear Peter,

You are registered for the care planning content via the HSCIC Technology Reference data Update Distribution website.

The national Care Planning Content is designed for use to support care planning functionality across health and social care. This functionality crosses many professions/sectors which may have differing descriptions for a care plan in the traditional health record (e.g. treatment plans, birthing plans, support plans, intervention plans or care order sets). The content can support the interoperation of care plans across boundaries and paper based care plans based on the pack have also been used successfully to gain greater familiarity with structured terminology (SNOMED CT).

More details at: http://www.infostandards.org/careplanning

The absence of a declared owner or sponsor for this product means that we are proposing to withdraw it and are keen to hear views and understand the impact of not maintaining this content and its associated services.

We have a number of questions to determine how information Standards could best support the development of a standard for care planning, the consultation can be found at:

https://consultations.infostandards.org/bdea/snomed-ct-care-planning/consult_view

- and we would value and encourage your feedback on this proposal.

If you have any questions regarding the above you can contact us by sending an e-mail to information.standards AT hscic.gov.uk. This is the preferred form of communication.

You can also telephone for advice and support. Our telephone number is +44 845 13 00 114
We are available weekdays from 9am to 5pm.

Regards
The TRUD support team
Health and Social Care Information Centre

Budgeting for Public Involvement in Research

Dear Colleagues,

INVOLVE and the Mental Health Research Network teamed up to produce a new resource to help with budgeting for the costs of public involvement in research. It can be used for everything from putting together an involvement budget for an entire study to working out how much it will cost to run a one-off consultation event.

The first part of the resource is a guide which:

• provides practical advice on what costs are associated with involvement in research
• includes a step-by-step process for identifying the associated costs and planning the budget
• presents examples of research projects with well-developed budgets for involvement work
• contains tips, links to useful websites, and references.

The second part of the resource is an online ‘involvement cost calculator' to work out the costs for your research study.

Please forward this information to your colleagues and networks.

If you have any questions or queries about Budgeting for involvement please contact:

Thomas Kabir
MHRN Service Users in Research Coordinator
Email: thomas.kabir AT kcl.ac.uk
Tel: 0207 848 0609
To find out about INVOLVE visit www.invo.org.uk

To find out more about the Mental Health Research Network visit
www.mhrn.info

My source: Laura Gardner: Research Design Service North West’s e-mail list.

[Two related items] Public consultation opens for World Conference on International Telecommunications (WCIT-12)

Firstly:

Stakeholders from across industry, civil society and general public
are encouraged to make their voices heard 

Geneva, 15 August 2012 – The public consultation process for WCIT-12 opened today, with interested parties able to make their written contributions to the WCIT-12 discussions via ITU’s website in any of the six official UN languages.

The site opened for contributions today at 15:00 CET. It can be accessed at
 www.itu.int/en/wcit-12/Pages/public.aspx

The site is the result of a decision by ITU Council on 11 July 2012 to make a draft of the principal input document to the WCIT-12 conference publicly accessible, and to establish a website where all stakeholders can express their views and opinions on the content of that document or any other matter related to WCIT.

 

Paul Budde Communication Pty Ltd

5385 George Downes Drive

Bucketty NSW 2250, Australia

www.budde.com.au

email: paul AT budde.com.au

Secondly:

 

---------- Forwarded message ----------
From:
Date: Tue, Aug 7, 2012 at 8:40 AM
Subject: [ISOC] NEWS RELEASE: Internet Society Board of Trustees Expresses Concern about the Potential Impact of the World Conference on International Telecommunications on the Internet
To: isoc-members-announce AT elists.isoc.org

Internet Society Board of Trustees Expresses Concern about the Potential Impact of the World Conference on International Telecommunications on the Internet

[Washington, D.C. and Geneva, Switzerland – 07 August 2012] – The Internet Society Board of Trustees, during its recent meeting in Vancouver, Canada, discussed the upcoming World Conference on International Telecommunications (WCIT) and expressed concern that some proposed changes to the International Telecommunication Regulations (ITRs) Treaty could have a negative impact on the Internet.

Eva Frölich, Chair of the Internet Society Board of Trustees, remarked, “The Internet Society believes that the International Telecommunication Regulations should contain high level principles and that revisions should focus on things that have clearly worked in the field of global communications: competition, privatization, and transparent and independent regulation.  It is our sincere hope that revisions to the ITRs will not interfere with the continued innovation and evolution of telecommunications networks and the Internet.”

The Board noted that the success of the Internet has been driven by open, consensus-based standards processes embodied in organizations such as the Internet Engineering Task Force and other critical parts of the Internet ecosystem that rely on openness and transparency.

The Internet Society Board of Trustees highlighted concerns about certain changes to the ITRs, which it found troubling.  Among other things, these proposals would:

• Make ITU-T standards mandatory;
• Create a new model for Internet interconnection via the ITRs;
• Adversely impact Internet naming, numbering, and addressing;
• Regulate network aspects that have never been part of telecommunications, including IP routing; and,
• Extend the scope and application of the ITRs to the Internet and Internet providers.

The Board is of the view that these types of provisions, if adopted, could jeopardize global connectivity and the future growth of the Internet, particularly in developing countries; impact the architecture, security, and global interoperability of the Internet; and impose detrimental burdens on the free and open Internet that billions of people around the world depend upon today.

Recognizing that developing countries face challenges in building Internet infrastructure and in bringing down connectivity costs, the Board of Trustees emphasized the Internet Society’s commitment to helping these countries overcome those challenges in ways that support global interoperability and the free flow of information, such as via the development of Internet Exchange Points to improve Internet performance and drive down Internet connectivity costs.

The Internet Society is a strong proponent of the open, consensus-based, multistakeholder model for standards setting and Internet policy development.  “Transparency and the multistakeholder model are essential to developing sustainable and effective Internet public policy,” said Internet Society President and Chief Executive Officer, Lynn St. Amour.

The Internet Society Board of Trustees called on governments not to adopt changes to the ITRs that would undermine the security, stability, and innovative potential of networks worldwide. In preparing for the WCIT, the Board urged all governments to engage in an open and participatory national dialogue, and encouraged Internet Society members to contribute actively to these national discussions that have a global impact.

For more information on WCIT, visit http://internetsociety.org/wcit

Link: http://www.internetsociety.org/news/internet-society-board-trustees-expresses-concern-about-potential-impact-world-conference

My source: Community Informatics List

Your help needed to develop an instrument to measure ‘e-health literacy’

Researchers from the University of Copenhagen, Denmark and Deakin University, Australia are developing an instrument to measure ‘e-health literacy’ in current and future users of healthcare.

To develop this instrument they are undertaking a comprehensive consultation with a wide range of stakeholders. This includes the perspective of users of the healthcare system, as well as the perspective of ‘experts’, i.e. researchers, healthcare professionals, managers and policymakers.

They are looking for help with this task to ensure that the research is comprehensive, asking for your views and observations on what a person needs to be able to do in order to use digital health services (e-health). To do this there is an online survey, which takes about 3 to 5 minutes to complete.

Please complete the survey no later than Wednesday, 1 August 2012. The researchers will collate statements from all respondents over the next month or so. In a second e-mail, they will ask you to group and rank individual statements in terms of importance.

The output will be a comprehensive map of the key elements of e-health literacy. This information will be integrated with data generated from workshops with both health care users and professionals. The final goal is the production of an internationally relevant tool to measure e-health literacy.

If you wish to receive a copy of the results of this research, please indicate this on the last page of the survey.

Please follow this link to the survey:www.survey-xact.dk/LinkCollector?key=DCXCFD3F3N36

My source: Patient Information Forum via twitter