Showing posts with label #mhuk. Show all posts
Showing posts with label #mhuk. Show all posts

Wednesday, 15 January 2014

Book review: Values-Based Commissioning of Health and Social Care

This book was a welcome change from the last review, being quite brief in comparison at 155 pages including the index. This isn't a criticism, it just helps in clearing the decks for other reading and distance learning.

The text is no lightweight, however; and should be mandatory reading for all health and social care personnel. Well maybe not all; but that is part of the problem. The clinical and social care workforce are trained to care. Commissioning (and clinical coding) is something done in another location, by other personnel.

If there is a recurring criticism of public services it is that they are cossetted, protected, removed from many of the financial realities of the world. The book, published in 2012, was written anticipating the structural and financial change brought in by the Coalition government and the need for austerity. Therefore, the public sector and clinical staff are not  immune from the vagaries of finance as might be assumed. For the past couple of years I've witnessed the regular shakes of the sieve and heard of the same within local authorities.

Christopher Heginbotham's book provides the background and tensions of commissioning and delivers much needed insight on several fronts by conjoining what so often seems remote. The lesson of the book for me is how distinct finance and commissioning are. I can sum this up as: if person-centred clinicians are concerned with sense-making for and with patients and their families, then commissioning is the sense-making of the available finance. Viewed this way you see the importance of commissioning.  Clinicians are concerned with evidence-based care, ethics, the health reforms, outcomes, quality, and of course values. Add to this patient involvement and public engagement and you have a read that opens a field that many clinicians dash by as they manage various clinical priorities.

Chapter 1 and 2 set the scene of values-based commissioning, definitions, the fact-value distinction; and the post-Labour NHS. The health reforms (chapter 3) are central to the text, but despite the date of publication which the author acknowledges there is little loss of significance. The health and social care commissioning landscape is still taking shape, outcomes based commissioning (chapter 9) can make the news as implementation is delayed (Williams, 2013). Chapter 4 describes the seven fat years followed by seven lean years; an excellent overview with the major influences at work, The Wanless Reports and Marmot Review for example. It is salutary in these times to see NPfIT as a footnote, with IT benefits still to be accrued (p.32). The need to respond to the public health challenges are noted (chapter 6), as with the potential mental health impact of climate change.

The book's figures and tables are a great asset, very useful to educate student nurses about commissioning, value and values. There are a couple of references to colour (p.72) in what are black and white - grey illustrations. 'Reading' the diagrams you can follow them. The author's background comes across, as with location and mental health experience. The book is I believe relevant to readers across all sectors. Heginbotham also indicates that the book is one of a series by CUP, and points to Fulford et al. as a sibling. There are a couple of repeated words but otherwise the production is excellent.  I was a little surprised to find a catastrophe in the text - catastrophe theory (p.51). It is well deployed in explaining complexity and values. When I say surprised perhaps I would really like to see more on this theme of complexity and emergence, but Mr Heginbotham stays clearly on track.

My bias - Hodges' model - found the following standout points:

http://www.cambridge.org/gb/academic/subjects/medicine/medicine-general-interest/values-based-commissioning-health-and-social-careThe number of sentences and figures that describe the individual, group, community and population (the structure of Hodges' model). The way that values can act as a counterpoint and essential adjunct to evidence (subjective - objective; qualitative - quantitative).

Some situations are more biological than others - in certain sorts of surgery, for example - and some have a much larger values base - such as in psychiatry (p.40).

 Reference to (Cronje and Fullan, 2003):
The medical literature demonstrates an equivocal attitude which suggests a 'collective need to better integrate scientific quantitative data . . . and the art of human judgement . . . into a common definition of "rational" medical practice (p.40).
Figure 7.8 Filtering the evidence through a values-based matrix (values across four care domains?).

The use of models to test the real world and reference to a values space.

I posted previously about the nhm - new holistic model (p.80).
(back to the review..!)

Technical aspects (a law and index) and ethical issues that beset commissioning are introduced (space is limited), and recur helping to integrate the book as a whole. Chapter 5 deals with public involvement and engagement and how it can be enacted. Chapter 7 on integrative commissioning invariably raises patient and service user care pathways.

Is this the Rorschach test for patient, care professional and commissioner: please draw your care pathway? 

The book admirably deals with the ideal and realised in the space available. As such even when there is a linear care pathway it is how it is experienced that counts (values and outcomes...). (It is sadly the person-affirming life-story pathway that is so often lost.) 

Perhaps, this is what I have in mind above in referring to emergence. Despite the existence of care pathways in practice the route in-through health and social care is probably found in a rather chaotic way (sudden care transitions); with delays, placement changes, ward movement(s)-stasis, choices to be taken into account, lack of attendance, missed appointments. ... This is why trying to define pathways may certainly assist, but it is the granularity of those definitions and their experience that snags at our clothes along the way. As Heginbotham advises - care pathways are not something to use in a slavish way. This excellent and well referenced book should provoke and establish interest in this very important health and social care activity. An activity and process that must be informed by the values of the public and those of patients and be more than a process, but realised in shared purposes and practise.

Many thanks to CUP for the copy.

Williams, D. Trust forces delay in outcomes based commissioning plan, Health Service Journal, 6 December 2013. p. 4-5.

Heginbotham, C. (2012) Values-Based Commissioning of Health and Social Care. Cambridge, Cambridge University Press.

Thursday, 12 September 2013

Stayin' Alive - a fun, guided, stigma busting cultural walk and celebration of World Mental Health Day


Dear friends of CoolTan Arts,

We would like to invite you to join us for Stayin' Alive - a fun, guided, stigma busting cultural walk and celebration of World Mental Health Day.

Saturday 12 October 2013, 11.30am-approx 4pm
Start:  Maudsley Hospital, Denmark Hill, SE5 8AZ (outside the main entrance)
Finish: South Bank
Length: 4.8 miles

By taking part in this sponsored walk you will help raise much needed funds for CoolTan Arts, enabling us to support more people with mental distress, through creative arts workshops and self-advocacy training.

This year’s walk theme is ‘Stayin’ Alive’ - exploring the idea of hope. As we walk the route together we will share what inspires us and makes life worth living through talks, discussion, performance and art!  CoolTan Arts have created a Hope Wall to share ideas before the walk: http://cooltanartshopewall.tumblr.com/

How to register for the walk:
There is a registration fee of £5 unwaged, £10 waged.

•    Register Online at www.cooltanarts.org.uk 
•    Call us on 020 7701  2696.
•    Email emmathatcher@cooltanarts.org.uk

Sponsorship:
•    Once you are registered CoolTan Arts can provide you with a sponsorship form.
•    Or, create your own online fundraising page on JustGiving.

Further info:
The Largactyl Shuffle is a guided, stigma-busting cultural walk, designed to encourage mental and physical wellbeing, through art, exercise, humour and history. The walk is named after the oldest anti-psychotic drug Largactil that can have extreme physical side effects including a distinctive shambolic gait, or ‘shuffling’. Largactyl Shuffle walks have been running since 2006 and are designed and led by CoolTan Arts volunteers who entertain walkers with talks and other surprises along the way.

The whole walk is 4.8 miles long and is suitable for people with disabilities and wheel chair users – do as much as you like. Please bring a packed lunch and drinks, wear suitable clothes and sensible footwear. The walk leaders wear orange high-viz vests and rucksacks. Call CoolTan Arts on 07985 658443 if you cannot find the group of walkers on the day.

Friday, 16 November 2012

Conceptual Reflections on Schizophrenia - Hodges' model

A decade ago I was studying the Psychosocial Interventions for Psychosis (COPE) pathway part-time at Manchester University. The student body was interprofessinal made up of nurses, psychologists, occupational therapists, nurses and if memory serves me right people from the voluntary (third) sector. What I learned then left me wondering where I had been all those years since qualifying (lost in IT....).

There are many universities now delivering this curriculum, presenting the very latest research. The lecturers are frequently the researchers themselves, working in ongoing multicenter trials studying  various aspects of the treatment and care management of psychosis.

This is why it is very alarming to hear of the lack of progress not just within in-patient care as per the findings of the Schizophrenia Commission, but the delivery of care for these individuals and their families across the health and social care system. Of course, as a former student and holder of a PG(Dip.) I am not at present practising these skills formally.

In the h2cm table that follows I have highlighted some of the main concepts across the care domains of Hodges' model:

INTERPERSONAL : SCIENCES
SOCIOLOGY : POLITICAL

beliefs, perception, attention, anxiety, stress, vulnerability, pleasure, feedback, motivation, mood, therapies, therapeutic relationship, communication, assets, cognitive triad, perception, delusions, hallucinations, positive and negative symptoms, person-centered care, existing coping strategies, mental health assessment, literacies (3Rs, emotional, health), salience, attention, attribution, meaning, creativityphysical health, weight, fitness, side effects, medication, atypical antipsychotics, evidence,
genetics, research, diagnosis, (cognitive) information processing, dual diagnosis, risk, models of care, recovery, hierarchy of clinical evidence, care processes - assessment, care planning, access to interventions, audio recording of sessions, protocols, DSM IV
clinical supervision, social attitudes - family, friends, community, stigma, myth, media, carers, familes, social relationships, network, self help groups, survivors,
www.hearing-voices.org/
activities, daily routine, 'value' of a diagnosis - pros & cons (discuss), community centers, clinical supervision, positive risk management, employment, social history of mental health, social psychiatry, stories,education - schools & community,
'community care', housing
mental health history, institutional vs. community care, mental health law, autonomy, consent, capacity, best interests, equity
mental health services, early intervention, access, POLICY, antipsychiatry, equity, governance, data gathering, statistics, reporting, outcomes, services,
secure provision, early intervention, crisis intervention, DSM V, commissioning,
funding for mental health, education and training, sickness - welfare benefits - 'incapacity' review 'return to work'

The relative position of concepts above does not indicate priority.



Thursday, 15 November 2012

Schizophrenia Commission - Recommendations


100 years since Eugen Bleuler coined the term, schizophrenia remains a stigmatised and misunderstood illness. Today a report is published on one of the largest ever reviews of the condition in England. We’d like to tell you about it - and how sharing a picture with your friends can help spread the message…

An independent inquiry

In November last year, Rethink Mental Illness launched the Schizophrenia Commission. Chaired by Professor Sir Robin Murray, this expert panel heard evidence from people with schizophrenia and psychosis, families, professionals, leaders of NHS and social services, academics, policy makers and journalists. Recommendations arising from their inquiry, released today, call for a radical overhaul of the current system of care.

The message that comes through loud and clear is that people are being badly let down by the system in every area of their lives    Robin Murray – Commission Chair
 

The commission found that

  • Only 10% of people with schizophrenia are being offered potentially life-transforming talking therapies such as CBT
  • Mental health hospital wards are often such appalling places they make patients worse rather than better
  • 1 in 3 people affected say they can't get quick access to services when they need it - and many don't know where to go for help
  • Major concerns remain about the lack of efficacy and side effects of anti-psychotic drugs, which can lead to rapid weight gain, diabetes, and heart disease
We need more people to understand the realities of living with schizophrenia. Share our infographic today so the public know more about what the illness is - and isn’t.

The messageThe report suggests priority actions that directly affect services for people with schizophrenia. Key recommendations include:

  • A complete overhaul of inpatient units including more widespread use of community based “recovery houses”
  • A redirection of funding from secure units into early intervention services, which save the taxpayer money and prevent people reaching crisis point
  • More research on the causes and treatment of schizophrenia and psychosis including the development of better drugs with fewer side effects
  • The elimination of poor prescribing by psychiatrists and the right to a second opinion on medication for patients
  • Extending access to psychological therapies and assertive physical health interventions
  • A stronger focus on prevention, including clear warnings about the risks of cannabis
  • Greater partnership with people with psychosis - valuing their experiences and making their preferences and goals central to their recovery
  • Action to meet the needs of all marginalised groups, especially those from African and Caribbean communities
  • A better deal for long-term carers who should be treated as partners, not problems
Read the commission’s report and their full 42 recommendations
See what commissioners themselves say about the recommendations and clinical practice by reading their blogs.

You can help
Do you want more people to understand what schizophrenia is? Help combat the myths surrounding the illness. Please share our infographic on Facebook and Twitter.

Thanks in advance for your support.
Rethink Mental Illness


My source: Pam Pinder c/o
http://www.jiscmail.ac.uk/lists/psychiatric-nursing.html
and various media twitter and BBC Radio 4.


Do check the infographic link in the above text.
The next post will provide a conceptual reflection on the above using Hodges' model.

Monday, 10 September 2012

DrupalCamp North West November 24-25 Manchester

If your are based in the North West of England, or can travel to Manchester there are plans for a DrupalCamp in November 24-25th at Media City Salford.

You can sign up for news - .

For the next few months the North West Drupal User Group are having 'back to basics' sessions (Madlab, Manchester 1st Weds in the month). I'm really grateful to Phil who sorted VirtualBox and DrupalPro on my Macbook last Wednesday. I've been struggling with MAMP since Drupalcon in Munich, asking too much of the conference wifi and paying the price with 'MySQL server gone away' and PDO errors. DrupalPro is quite something behold.

Thanks to the NW gang, friends old and new. Before DrupalCamp there is also PHPNW 2012 to enjoy next month.

Monday, 18 June 2012

Musings on a mixed and busy fortnight: Oxford Drupal Education Camp

There is a busy fortnight coming up here. If all goes according to plan it runs like this: Drupal, Visual Methodologies and Ruby.

On Thursday evening I will travel down to Oxford for Drupal Education Camp. My first Drupal effort is taking shape. There are five photos in a jCarousel. I think I'm almost there but after the five scroll through there are five empty placeholders or blanks. It's probably just a tweak to the settings. The enquiry form is completed. I'm not happy about the formatting which seems to characterise many Drupal pages: that of the long series of fields. Listening to discussion at Drupal NW this month also reminded me of the need for spam capture.

I'm hoping one or two Drupal mental health contacts from Cambridge in January may also attend. The accepted sessions for Oxford present a very useful mix (timing permitting), especially:

Drupal 7 Semantizer

How we built a virtual learning environment

There was a debate on the longevity of VLEs in Wolverhampton in 2008-09. As I tried to look up that event I noticed that variations on the theme of "The VLE is dead, long live the VLE" are still doing the rounds. Clearly a case of the undead.

So, three - four years on this should insightful: What is a VLE? Is there a hybrid form? How far can Drupal be pushed? Why do students use FB and by-pass the institutional 'tools'? Perhaps it's because the institutions are busy deliberating the existence of this TLA versus that?

Migrating data into Drupal using the migrate module

NeuroHub: The information environment for Neuroscientists

The content of a new h2cm website will (yes, I know....) combine archive material - Brian Hodges' notes - with new work. For student users a means to assess and measure understanding of the content makes sense. I implemented a crude multiple choice test. The questions were probably not too bad, but there was no log-in, administration. If assessment can be done in a standardised way then that would be a huge bonus. What a new site should be about though is facilitating students in developing their knowledge and application of Hodges' model. The context of that knowledge and application need not be wholly limited to nursing.

After Oxford, on Monday 25th and after work I'm heading east to Newcastle for two days. I'll reflect on that soon. The trick is going to be threading all these together.

Monday, 6 February 2012

Follow-up: Drupal ScienceCamp Cambridge 20-21st Jan 2012

Stefan van Hooft @_iCompute kindly took these notes for the Mental Health session, 10.45am 22 January 2012 (mentioned previously on W2tQ). Stefan captured the topics that were quickly and briefly raised among the seven attendees (contact details provided but withheld here). I have added some [additional comments] and my response follows:

--- Twitter hash tags ---
Mental Health #mhuk #ukmh [global mental health hash?]

RDF
Solr
Sparkle [SparQL]

• accessibility within website
• openair Open source mental health [OpenEHR]
• mental health record
• care plans
Who has access to information?

•  Set up a system, you can give and revoke others access to your data
• "Flourishing" or "In treatment"

Use Drupal:
     - distribution
     - accessibility
     -
Is there a Group on drupal.org about mental health?

Security is crucial!
Pubsubhubbup [ http://code.google.com/p/pubsubhubbub/ ]
Spartacus report
Burn out
#Nhssm, NHS social media
<->
Dear Stefan and All,

STEFAN'S SELF-ASSESSMENT TOOL

I am interested in the application you showed, it reminds me of the STAR - SPIDER format and approach. I think there's a tool like this in forensic mental health - and no doubt other areas?

http://hodges-model.blogspot.com/2010/06/carers-support-evidence-measures-and.html

At some point Stefan it would be good to feature your image based tool when suitably complete on my blog; do you have a video at all?

HODGES MODEL

If anyone is interested in receiving more details on Hodges model please let me know. This model looks simple but it is really powerful in terms of scope and application.

In addition should anyone have key resource suggestions to add here they would be much appreciated:

http://www.p-jones.demon.co.uk/links.htm

FUTURE MEETING

Matthew mentioned the possibility of a small gathering combining mental health and Drupal. I'd be pleased to help with publicity - twitter, FB, Linkedin and the blog and have links with many other groups.

DRUPAL HEALTH GROUP

Here is the link to the health care Drupal group:

http://groups.drupal.org/healthcare

- note at the top the link to Drupal health care sites.

openEHR

Here is openEHR which I mentioned:

http://www.openehr.org/home.html

RDF and related

http://sciencecollaboration.org/download

http://drupal.org/project/neologism

Lovely to meet everyone and really pleased to have the chance to share an hour (after the meeting) with Beatrice and Matthew. It is *great* in fact that the mental health and disability came up at a Drupal meet. I hope to attend Drupalcon Munich so maybe there is scope for a BoF meeting in the summer?

<->

Shortly I'll post some additional observations by Matthew Taylor another participant. There I'll expand on my requirements and expectations of Drupal.